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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Light treatment

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Light treatment
jopoh Offline
Novice


Posts: 9
Threads: 2
Joined: Dec 2017
Gender: Male
Location: Sg
Treatment: Uvb to Cosentyx
#11
Wed-04-07-2018, 16:28 PM
I am surprised to hear that there is a "lifetime threshold" for light treatment as my doctor has always reassured me that there is no risk of skin cancer for light treatment.  Huh  Huh  Huh

Having said that I was uvb for 7 years and the effect is wearing off, the P comes back very quickly the moment I reduce the dosage and also the burnt feeling on the skin is getting more unbearable for me.
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Caroline Online
You must hurry if you ever want to catch a chicken...
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Forum Helper
Posts: 26,496
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#12
Wed-04-07-2018, 19:42 PM
(Wed-04-07-2018, 16:28 PM)jopoh Wrote: I am surprised to hear that there is a "lifetime threshold" for light treatment as my doctor has always reassured me that there is no risk of skin cancer for light treatment.  Huh  Huh  Huh

Having said that I was uvb for 7 years and the effect is wearing off, the P comes back very quickly the moment I reduce the dosage and also the burnt feeling on the skin is getting more unbearable for me.

I have read last week an article in the periodical of juni 2018, theme sunbathing, of the Psoriasis unity in the Netherlands. It is an interview with a leading dermatologist with expertise in skin cancer. She says: “you need vitamine D, but don’t go into the sun unprotected. Within 20 minutes you already can have skin burn. And a sunburnt skin enhances the risk on skincancer.”
The last paragraph tells about the addition of damage by sunburn. The sun (and also UVA and UVB) damages your cells. You have a repair mechanism, so the cells will be repaired. But when you keep on repeating and become a little older then this repair mechanism will start to falter. I could send you the article but it is in Dutch. Big Grin
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,149
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#13
Thu-05-07-2018, 11:46 AM
(Wed-04-07-2018, 19:42 PM)Caroline Wrote:
(Wed-04-07-2018, 16:28 PM)jopoh Wrote: I am surprised to hear that there is a "lifetime threshold" for light treatment as my doctor has always reassured me that there is no risk of skin cancer for light treatment.  Huh  Huh  Huh

Having said that I was uvb for 7 years and the effect is wearing off, the P comes back very quickly the moment I reduce the dosage and also the burnt feeling on the skin is getting more unbearable for me.

I have read last week an article in the periodical of juni 2018, theme sunbathing, of the Psoriasis unity in the Netherlands. It is an interview with a leading dermatologist with expertise in skin cancer. She says: “you need vitamine D, but don’t go into the sun unprotected. Within 20 minutes you already can have skin burn. And a sunburnt skin enhances the risk on skincancer.”
The last paragraph tells about the addition of damage by sunburn. The sun (and also UVA and UVB) damages your cells. You have a repair mechanism, so the cells will be repaired. But when you keep on repeating and become a little older then this repair mechanism will start to falter. I could send you the article but it is in Dutch.  Big Grin

I had UV for a long period of time and the dermatologist said I was reaching my maximum , it did work up to a point but when I came off it the P came back over a few months so bad I ended up in hospital which was probably a good thing as they found a problem with a lump on my back which they removed and I have not had any more trouble in that area again.
We are all different so you can't really compare one person to another only in a general way.
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JohnB Offline
I wanted to be an Engineer when I grew up, but was told I could'nt do both

100 + Member I Just Cant Stop !
Posts: 4,725
Threads: 36
Joined: Jan 2016
Gender: Male
Location: Lancashire UK
Psoriasis Score: 10
Psoriatic Arthritis Score: Hmm Maybe
PQOLS: 5
Treatment: Otezla/Apremilast & Enstilar occasionally.
#14
Sat-07-07-2018, 10:09 AM
Hi Filmbuff.
I've had 3 sessions of UV. The first UVB worked quite well, up to 90% clearance, sadly it only lasted a fortnight before the dreaded Ps returned. The second session the Ps started to return about 2/3 of the way through so it was decided to terminate the treatment, but at the time I was under severe stress loosing my Dad to liver cancer, so I doubt anything g would have helped then. The third time it was UVA where you take tablets to sensitise your skin and they cook you until medium rare. This cleared a lot up within 4 or 5 sessions but as with the UVB it started to fail towards the end of treatment.
As Dave has said though we are all individuals and I have heard of sufferers achieving several years of remission - you just never know  Confused
It's a black art treating this disease  Wall
JohnB
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cbleahen Offline
Member


Posts: 10
Threads: 1
Joined: Aug 2018
Gender: Female
Location: Galway
Psoriasis Score: 30
Treatment: lotions, potions & phototherapy
#15
Wed-22-08-2018, 17:24 PM
Hi Filmbuff

I'm in similar situation - just had session 5 of UVB light treatment, a whopping 24 seconds.  I don't notice any improvement on my body, but the nurses say it's looking better - and I'm hoping they see something I don't.  I have pustular on my hands and that is getting worse - whether that's down to a stressful weekend or the light treatment, I'll have to wait and see.

I have been told there is a maximum number of treatments I can have in my lifetime - about 300.  As I'm pale and pasty (Fitzpatricks skin type 1) I rarely stay in the sun for long anyway, but have been warned that during the UVB treatment that I mustn't get any additional sun on my skin, and to use factor 50 when out and about.  I am worried about increased risk of skin cancer, premature aging, blistering and the treatment not working, but am willing to try at least one round (approx 30 sessions here) to see if it works.  If it doesn't, or has limited effectiveness, I'll go back to managing with diet only (no dairy, refined sugar, gluten and alcohol (unless it's clear!)) and most importantly, trying not to get stressed.  

I'll be really interested in hearing how you get on.

Cat
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