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Psoriasis Club › HealthHealth Boards › Psoriasis And Psoriatic Arthritis Topics v
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I need more Psoriasis

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I need more Psoriasis
Hanna Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 594
Threads: 38
Joined: Nov 2011
Gender: Female
Location: sussex, UK
Treatment: Nothing!
#11
Tue-10-07-2012, 13:36 PM
I hope your managing ok, and fingers crossed ot long for your appointment x
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,958
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#12
Tue-10-07-2012, 14:02 PM
(Tue-10-07-2012, 13:36 PM)Hanna Wrote: I hope your managing ok, and fingers crossed ot long for your appointment x

So far I'm ok but had forgotten how damn annoying it all is. Toying with the idea of going back on Stelara at the moment.

Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,958
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#13
Thu-12-07-2012, 12:09 PM
Spoke to my dermatologist on the phone this morning, and she said I wont be going on the trial for the Anti Jak as I don't fit the protocol. It must be an omen, I was thinking of opting out of the trial anyway.

So we had a long discussion and I'm going up to see her on Wednesday for some blood tests and maybe go back on to Stelara. she is still a bit concerned about my psoriatic arthritis and would like me to try MTX again.

The Stelara had stopped being so effective but she did mention we could look at different time intervals between shots. In some ways I'm pleased as at the moment I'm having a bit of a flare up and it's getting to me a bit, and I do know that Stelara was the best thing I ever had for the psoriasis.

Will report back after my appointment on Wednesday. Now to start getting myself psyched up for a visit to the City Scare
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,958
Threads: 3,888
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#14
Wed-18-07-2012, 19:05 PM
OK back from the big city and survived Oh how nice to be back in the country. Anyway I can't go onto the trial for the Anti Jak because of previously using Remicade, Enbrel, Humira, and Stelara. I think they only want people who have only tried creams UV etc.

So I have to phone in the morning to check my blood tests are ok and if they are, my dermatologist has given me a prescription for Stelara every 8 weeks, and then report back to her at week 14.

My psoriasis score is 27 at the moment, and my legs are starting to drive me nuts. Psoriatic Arthritis is not to bad so I didn't go for the MTX I doubt I would have done anyway Tongue

Now I no longer need more psoriasis there's not much point in me continuing this thread.



Fred.  



EDIT: I have started a new thread if you still want to follow my progress with Stelara here. Stelara round two
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