Psoriasis blisters

[Annettaj]

Does anyone get blisters on there palms and feet.  Has anyone found something that can stop it.  I’m on enbrell and using fluocinonide cream but the blisters are so bad I can barely walk. I use baking soda to bathes to help with the pain and soreness.  Any input would be appreciated.

[Fred]

When you say "Blister" do you mean normal blisters like a bubble filled with liquid ? or as do you mean Pustular Psoriasis ?

See here: Pustular Psoriasis

I'll move this thread to Psoriasis And Psoriatic Arthritis Topics it may get picked up better there.

[Annettaj]

I believe it is pustular psoriasis based on the description.

[Fred]

I believe it is pustular psoriasis based on the description.

In that case it may be worth moving from Enbrel to something like Stelara or Cosentyx.

I may be wrong, but when I had a reaction to Humira they said it was starting to cause pustular. And since being taken off of all the TNF bio's all has been fine.

[Annettaj]

Well that’s not really good news for me. I have tried humira, stelara and cosentyx.  I go to derm on 17th I hope there is another option or maybe I should just stop all of them. Psoriasis is keeping me from work I am trying to work from home but I am not sure how much longer they will let me do that.

[Fred]

Well that’s not really good news for me. I have tried humira, stelara and cosentyx.  I go to derm on 17th I hope there is another option or maybe I should just stop all of them. Psoriasis is keeping me from work I am trying to work from home but I am not sure how much longer they will let me do that.

Giving up is not something I would go for, but you could try a diet some say it works but not many come back and back it up.

Have you tried Tremfya ? Tremfya (guselkumab)

Sorry I'm not much help when it comes to pustular, hopefully others will chip in.

[Annettaj]

I really appreciate your  thoughts at least I know someone cares

[Fred]

I really appreciate your  thoughts at least I know someone cares

We all care here.  

I have sent a couple of messages to some with Pustular, maybe they will pop in.  

[jiml]

Yes Annetta we all care here   unfortunately I can't offer any advice about your blisters as it's never been a problem for me and I haven't progressed to biological drugs. But I hope someone will see this and be able to offer advice    I see Fred has already pointed you towards Tremfya
Good luck
Jim  

[Wooley]

Does anyone get blisters on there palms and feet.  Has anyone found something that can stop it.  I’m on enbrell and using fluocinonide cream but the blisters are so bad I can barely walk. I use baking soda to bathes to help with the pain and soreness.  Any input would be appreciated.

Hey Annettaj

Welcome to the group 

I was diagnosed with Pustular Psoriasis in April 2017 - it was awful and I felt so embarrassed and self-conscious it was a rubbish time for me..... I went to my doctors who somehow managed to diagnose it as Pustular Psoriasis....    I then saw a Consultant who specialised in this particular disease and i was fast tracked into having PUVA treatment (psoralen and ultra violet light).  Subsequently I have been on 10mg of Acitretin since then and it has seemed to keep it at bay, thankfully!

I will say though my feet, like yours, were just unbearable and I was in total agony walking around, which was unfortunate as my job involves a lot of walking!!!! 

I have to say (and i know i am lucky to be able to say this at the moment) but I have lucky enough to be pretty much clear for over a year..... Consultant says it won't last for ever, but so far so good.....so I won't lie, I do feel very lucky!

Treatment wise (apart from drugs and PUVA), I tried to moisturise every night and morning, with Epaderm, to try and stop my feet from drying out but if i had to pick something that I thought worked for me it would be a combination of starting PUVA and mid way through starting Acitretin.....

I definitely know that this disease is made worse with stress.....so I tried to be as stress free as possible - virtually impossible in the world we live, i know!!

I am not sure how it works in the states but I actually chose which doctor i wanted to see, who specialised in this particular element of psoriasis so think that helped too...

I really really hope that you can find some respite from this disease and if you think i can help any further give me a shout....

Fingers crossed you find a solution soon........