Pustular psoarisis what works

[Snitter65]

Hello everyone
I have been reading many posts to help my try to understand this horrible disease better and get an idea as to what medications/diet or other treatments are working best for others. Have had pustular psoarisis since 2014.  Getting worse all the time. Have landed in the hospital with cellulitous. Hands and feet are terrible., I am typically a very active person but this is starting to really affect me emotionally and physically. Have tried creams, methotrexate, humira, now taltz. Any advice or what worked for others I woukd appreciate.  Thanks in advance

[Caroline]

Hello Snitter,

Welcome to Psoriasisclub. You can feel at Home here as we all have some form of Psoriasis.
You have already found out that some different medication does not help for you. Taltz should be a good choice. We have several people doing well on this bio.
We are all different and react differently to medication. There are more possibilities to go if Taltz would not work, I am thinking of Stelara.

With a bit of luck someone with postular will jump in and give his/her opinion and experience.

In the mean time, enjoy on the forum. We understand that Psoriasis is a heavy mental condition, so we fight this by a bit of banter and laughing and drinking in our Off Topic section, as we all experience that worrying is making our Psoriasis worse.

So enjoy, there are all kind of kind people over here.

Cheers,
Caroline

[jiml]

Hello everyone
I have been reading many posts to help my try to understand this horrible disease better and get an idea as to what medications/diet or other treatments are working best for others. Have had pustular psoarisis since 2014.  Getting worse all the time. Have landed in the hospital with cellulitous. Hands and feet are terrible., I am typically a very active person but this is starting to really affect me emotionally and physically. Have tried creams, methotrexate, humira, now taltz. Any advice or what worked for others I woukd appreciate.  Thanks in advance

Hi snitter and   to the club, you are right the disease is horrible, and we all know that there is no cure, if there was,  this place would not be needed.
Pustular psoriasis as you have found out is a difficult one to control but we do have members that have it under control with various treatments, unfortunately there is no one drug that works for everyone . I myself have only got plaque psoriasis. So can't advise on what might work for you, but like Caroline I hope some of our members with the problem will come up with some ideas for you.

There is lots of information here and if you put pustular in the search facility Search you should get a lot of threads to look at



Enjoy yourself on the club and hope you get some answers here, good luck
Jim

[Fred]

Hello Snitter65   to Psoriasis Club.

Unfortunately you have one of the hardest forms to treat. We do have other members that have made posts so like Jim said it could be worth you trying a search to see if you can find something. I ended up with mild pustular after a reaction to Humira, but it soon went after stopping and thankfully never came back.

Hopefully Taltz will give you some relief. It goes after a different target than Humira, so hang on in there. Also it may be worth trying Stelara see this thread: Stelara and the treatment of palmoplantar pustular psoriasis

I have made a change to your subject heading to help others find this thread.

Regards.

Fred.

[Snitter65]

Thanks everyone for the welcome. Having a group who understands what I am going through is going to be great.  How do I reply to a particular post?  Either I am really bad at tech or I find this sight a little difficult to navigate.  ( and to think I used to make fun of my parents for trouble with technology) ?

[Grizzly Bear]

Thanks everyone for the welcome. Having a group who understands what I am going through is going to be great.  How do I reply to a particular post?  Either I am really bad at tech or I find this sight a little difficult to navigate.  ( and to think I used to make fun of my parents for trouble with technology) ?

Good evening Snitters, to the mad house.

I’m the insane one on here, the others are loonies

To reply to a post, hit the Quote button and started typing after the [quote], easy peasy lemon squeezy

GB

[jiml]

Thanks everyone for the welcome. Having a group who understands what I am going through is going to be great.  How do I reply to a particular post?  Either I am really bad at tech or I find this sight a little difficult to navigate.  ( and to think I used to make fun of my parents for trouble with technology) ?

Hi snitter ......it’s easy to reply to a post the easiest way to explain is give you a link here Posting A Reply
If you can’t work it out from there just shout and someone will guide you

[Wooley]

Hello everyone
I have been reading many posts to help my try to understand this horrible disease better and get an idea as to what medications/diet or other treatments are working best for others. Have had pustular psoarisis since 2014.  Getting worse all the time. Have landed in the hospital with cellulitous. Hands and feet are terrible., I am typically a very active person but this is starting to really affect me emotionally and physically. Have tried creams, methotrexate, humira, now taltz. Any advice or what worked for others I woukd appreciate.  Thanks in advance

Hi Snitter

  to the Psoriasis Club!

I was diagnosed with pustular psoriasis in April this year - hit me like a tonne of bricks to be honest and I am still trying to come to terms with it and get my head around it.  I truly feel your pain, I too am was really active, went to the gym three times a week, played all sport especially football but I haven't played since around June as my feet are in so much discomfort and quite frankly agony sometimes!!  My job involves spending a lot of time on my feet too which has been impacted on......

I totally get where you are coming from in terms of it affecting you both emotionally and physically and quite frankly it is totally depressing......made worse when you can't see a light at the end of the tunnel....

So to date I was lucky in that I was fast-tracked into the system and pretty much started PUVA beginning of July and went to the hospital twice a week for about 3 months (which in turn takes it toll on you).  Half way through the treatment I started on Acitretin, 10mg a day, it is thought that starting this drug mid way through PUVA it has a better effect on your skin when PUVA finishes..... 

So since around the beginning of August, I have had no pustules either on my hands or feet, so currently really happy with this as you can imagine.  My feet are still very very sore though and various footwear is just a complete no no - including most trainers.  Not convinced that it will last though sadly, but I am trying to remain positive and just take each day as it comes really......

Sounds like you have been through the mill a bit to be honest so I hope you can find something that will work for you soon and you are able to get some kind of normality back in your life without it revolving around this crappy disease!!

You will enjoy your time in the club though, the members here have mainly absolutely to be fair, kept me sane to be honest, with their support and advice.  None of us are experts in this crappy disease but you will get a lot of support on here and a friendly shoulder should you need it......!

Welcome to the club   

Wooley

PS Epaderm is my saviour most of the time!!!

[KyPrincess]

Hi snitter. Welcome to the club.

[Kat]

Welcome!

There are many different treatments available, different people have different success rates. I hope you have good results with Taltz.

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