[split] Acitretin

[JohnB]

Hi guys, I am new to the forum and was encouraged to join by the support for each other I read on the forum. Very encouraging to see. 
  I have now started my journey with Acitretin. I will keep everyone up to date with my progress.

 Welcome to the Club Acedaly. Like Jim has said we are all friendly bunch, afflicted with this disease, some more than others. There are quite a few of us on Acitretin with several having only recently started on it. It is starting to look like we may outnumber the DMF gang   . (A little friendly rivalry). I have been on it for a couple of months now and fortunately have had few side effects, dry lips being the continual one. I have had peeling palms and soles of my feet but this appears to have receded now. Give it plenty of time it is a very slow burner in most people, but you should start seeing some effects in around 6 weeks. Please let us know how you go on with it good or bad, it is all useful information. Any questions, dont hesitate to ask, somebody will point you in the right direction if they can't answer it directly.
Don't forget the off topic area, there is generally someone lurking in the background.

[Grizzly Bear]

G'day Ace, welcome to the loony bin mate    

I've never been on Acitretin so i can't comment on it.

Enjoy yourself on here buddy.  

GB

[Acedaly]

Thanks guys,

Compared to most my psoriasis is quite minimal but in really annoying places such as my hands and the bottom of my feet and my face which of course have made steroid creams pretty useless because you use  these quite a lot and I think most of the time the creams have just rubbed off so they want to try the Acitretin on a small dose of 10mg to see if it will work. 

Whilst I think my condition is quite minor, it seems to have gotten worse slowly over 12 months and I am hoping that I can just clear it up for a bit. 

Day 1 - there are no noticeable side effects. I suspect any side effects will probably take a week or so to present.

[Fred]

Day 1 - there are no noticeable side effects. I suspect any side effects will probably take a week or so to present.

Hello Acedaly   to Psoriasis Club. I've only just noticed you are a new member as I don't tend to read this thread.

It's up to you but you may be better starting a new thread about your journey as this thread can get a bit muddled up, and it will be easier for you and others to find if you have your own thread.

Regards.

Fred.

[elpuno]

hi there,

my name is phil and i am from germany so please excuse the wrong spelling and other mistakes :-) i read a lot in this forum and now i decided to give you a bit of my experiences back. there is a lot of information in this forum and all of you seem to be very nice people :-)

i am 34 and in the middle of may (so about 4.5 months ago my hand started itching. The dermatologist (is that right) said "ekzem" and gave me cortison creme and said "good luck". after 2 months of using the cream and a lot of other creme i went to the dermatologic clinic here in munich because they are specialized for treatments of the ekzem. they also said: ekzem (second time i had the diagnose of a ekzem).

So i started with a PUVA-treatment at the end of juliy until the beginning of september. it helped a bit but not as good as i was hoping and so they decided to give me toctino. The doctor that had to decide about the dose (he is something like the superstar in this hospital concerning all things with psoriasis. and, surprise: he is really nice) took a look at my hand and said that toctino is not the right medicine for psoriasis pustulosa and i had to take neotigason. nice, after 1.5 months i finally got a new diagnose.

anyway i started with 30mg per day four weeks ago. minimal side effects (i am always tired, sometimes i got a headache) but the skin on the hands and the feet is really really peelng off. blood values are also very good at the moment.
 
but no itching and no pustulosa at the moment only red skin on the hands and feet and i hope the peeling ends soon, i heard and read that this is a normal side effect. will continue with the 30mg per day until i went to the hospital in 2 weeks. 

so long, greetings from germany and all the best to all of you
philipp

[jiml]

hi there,

my name is phil and i am from germany so please excuse the wrong spelling and other mistakes :-) i read a lot in this forum and now i decided to give you a bit of my experiences back. there is a lot of information in this forum and all of you seem to be very nice people :-)

i am 34 and in the middle of may (so about 4.5 months ago my hand started itching. The dermatologist (is that right) said "ekzem" and gave me cortison creme and said "good luck". after 2 months of using the cream and a lot of other creme i went to the dermatologic clinic here in munich because they are specialized for treatments of the ekzem. they also said: ekzem (second time i had the diagnose of a ekzem).

So i started with a PUVA-treatment at the end of juliy until the beginning of september. it helped a bit but not as good as i was hoping and so they decided to give me toctino. The doctor that had to decide about the dose (he is something like the superstar in this hospital concerning all things with psoriasis. and, surprise: he is really nice) took a look at my hand and said that toctino is not the right medicine for psoriasis pustulosa and i had to take neotigason. nice, after 1.5 months i finally got a new diagnose.

anyway i started with 30mg per day four weeks ago. minimal side effects (i am always tired, sometimes i got a headache) but the skin on the hands and the feet is really really peelng off. blood values are also very good at the moment.
 
but no itching and no pustulosa at the moment only red skin on the hands and feet and i hope the peeling ends soon, i heard and read that this is a normal side effect. will continue with the 30mg per day until i went to the hospital in 2 weeks. 

so long, greetings from germany and all the best to all of you
philipp

Hi Philipp and   to the club .... don't worry about spelling here my posts have plenty of mistakes and it's my native language
So you were misdiagnosed at first but many of the things you were prescribed could have worked for your psoriasis. But you have now got Acetretin and seeing good results

I'm sure some of our Acetretin users may have some advice for you,  but as you say your side effects seem quite usual and should get easier as time goes on
I look forward to hearing more from you as the treatment progresses
Jim

[Caroline]

Grüss Gott Philipp !
Wilkommen zum Psoriasisclub.

Great that you have positive effects from acetretin.
You are in a good situation in Germany concerning psoriasis. There Is many knowledge in your country about this disease.

Don't worry about your possible spelling mistakes, they did not hold it against me either (I'm Dutch).

Have fun on the forum.

Cheers,
Caroline

[Fred]

Hello Phil, no one will complain about your spelling I can assure you of that. Though we are an English speaking forum we do have members from around the world, and I for one admire those that join and talk in what is not their native tongue. So don't worry about your spelling or translation, should anyone knock you for it let me know and I will look into it.

Re your questions, I can't help but you may get better answers if you start a new thread in Prescribed Treatments For Psoriasis as it may get picked up better and get you more answers.  

Welcome to Psoriasis Club by the way.

Regards.

Fred.

[elpuno]

thx @all for the warm welcome :-)

i will start a new thread as fred told me. thread and fred...that is a rhyme :-)

phil

[Fred]

thx @all for the warm welcome :-)

i will start a new thread as fred told me. thread and fred...that is a rhyme :-)

phil

So it is

Here is a link to the new thread Neotigason Experiences?