Return of psoriasis while on Fumaderm

[jiml]

I would phone and speak to the dermatology team if you don't see an improvement in a week asking for his blessing to increase to 4 tablets as Caroline has suggested...I would not wait 3 weeks if it remains bad

[Kat]

I've never been on Fumaderm but wanted to say hello and welcome!

[Bill]

Hi Mac and welcome,

Did you have any disease when you started cutting back on the dosage? And if you were clear, how long had you been so? I found that after about six months a dose of 3*240 mg a day started losing effect.

As I am a self-medicating guinea pig I have even more scope to experiment than your dermatologist. The short of it is that I found greater efficacy with doses of 800 mg taken two or three times a week. This dose has not lost efficacy, and the longer I am on the drug the less rebound of disease I seem to have when I stop treatment.

I am currently testing 600 mg doses taken twice weekly. Like Jim and Caroline I get arthritis as well, so I think I will always need to take a fair whack. But I hold on to this little hope that my disease will keep reducing on the larger doses and eventually accord me option of a smaller maintenance dose.

Cheers,

Bill

[Fred]

Apologies if this has already been discussed(i tried searching previous posts) or if i have posted this topic in the wrong place.

No need to apologise we don't expect everyone to read through the whole of the forum so don't hesitate to ask questions, if it's been asked before we will still give an answer or point you to other threads that may be of help. But yes you have posted in the right place and I see you are getting answers, so I'll leave you to it as I don't know much about fumaderm myself.

Welcome to Psoriasis Club by the way.

Regards.

Fred.

[Mac092]

Hi everyone

just a quick update, Thanks for everyone's replies on this thread!

It's been about 2 months since my flare up while on fumaderm. 

Delighted to say after seeing my derm, i was returned to taking 6x 120mg fumaderm a day and it has cleared up 95% 

he did warn me it could be another couple of weeks before i get back to full remission as i had seen before!!

so what I've learned is fumaderm does work, once the dose is controlled..

Thank you for all the advice I received here!!! 

[Fred]

Hi everyone

just a quick update, Thanks for everyone's replies on this thread!

It's been about 2 months since my flare up while on fumaderm. 

Delighted to say after seeing my derm, i was returned to taking 6x 120mg fumaderm a day and it has cleared up 95% 

he did warn me it could be another couple of weeks before i get back to full remission as i had seen before!!

so what I've learned is fumaderm does work, once the dose is controlled..

Thank you for all the advice I received here!!! 

Great to hear.

I'm pleased the forum has been of help to you, and please don't hesitate to keep us informed or join in.

[Bill]

That is good to hear your news, Mac. My concern with DMF is the lymphocyte count.

Cheers,

Bill

[jiml]

That is good to hear your news, Mac. My concern with DMF is the lymphocyte count.

Cheers,

Bill

Good reminder Bill , yes Mac I trust you are having regular blood tests ...if not you should get them done taking particular attention to your lymphocyte count .....should be between 1 and 3 ....I always ask for my results monthly so I can track my progress

[Mac092]

I have blood tests done monthly as per my derm's instructions 

So I have had no issue with my bloodcount, as doctors have told me..

Had never thought to ask for a copy of my results, but I'd definitely ask in the future!! Cheers 

[jiml]

I have blood tests done monthly as per my derm's instructions 

So I have had no issue with my bloodcount, as doctors have told me..

Had never thought to ask for a copy of my results, but I'd definitely ask in the future!! Cheers 

I used to be told that my bloods were normal and accept that, but since keeping a record of my treatment here, I began to ask for the results so I could put them on here and keep track of any changes...sort of early warning system ....as the hospital might not react as long as they are happy with the results which may possibly be outside the normal range, now when my lymphocytes drop I can adjust my dose down for a few weeks to allow them to recover but I always tell my dermatologist when I reduce the dose ...this sometimes happpens after an infection ...but at least I feel in control...and it seems to work well for me