Psoriasis Club
  • Forum
  • Home
  • Portal
  • Member List
  • Psoriasis Score
  • PQOLS
  • What is psoriasis
  • Search
  • Help
Hello Guest, Welcome To The Psoriasis Club Forum. We are a self funded friendly group of people who understand.
Never be alone with psoriasis, come and join us. (Members see a lot more than you)
wave
Login Register
Login
Username:
Password:
Lost Password?
 
Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
« Previous 1 … 11 12 13 14 15 … 26 Next »

Brittle nails with acitretin

Pages (2): « Previous 1 2
Threaded Mode
Brittle nails with acitretin
soosieb99 Offline
Member


Posts: 39
Threads: 2
Joined: Feb 2015
Gender: Female
Location: Cheshire, England
Treatment: Currently with creams, awaiting appointment for Acitretin
#11
Sun-05-03-2017, 21:59 PM
Hi
I've not been on here for a while. I had terrible side effects with acitretyn. Bad hair, very brittle nails, bad flushes and it didn't really clear the psoriasis. The derm took me off it because there were too many and it's taken 6 months for everything to get back to normal. I found the whole thing made me depressed on top of everything else. He offered me another med beginning with c (can't remember the name of it but the side effects looked even worse so I declined. So am now back where I started albeit with hair and nails and no depression. Currently I am just using cream and putting up with it. Not easy but hey.

Went back to derm recently and talking of going back on acitretyn but I don't think i will. I can't face going through it all again.

Hope everyone is doing ok.

S
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#12
Sun-05-03-2017, 22:15 PM (This post was last modified: Mon-06-03-2017, 00:58 AM by jiml.)
(Sun-05-03-2017, 21:59 PM)soosieb99 Wrote: Hi
I've not been on here for a while. I had terrible side effects with acitretyn. Bad hair, very brittle nails, bad flushes and it didn't really clear the psoriasis. The derm took me off it because there were too many and it's taken 6 months for everything to get back to normal.  I found the whole thing made me depressed on top of everything else. He offered me another med beginning with c (can't remember the name of it but the side effects looked even worse so I declined. So am now back where I started albeit with hair and nails and no depression.  Currently I am just using cream and putting up with it. Not easy but hey.

Went back to derm recently and talking of going back on acitretyn but I don't think i will. I can't face going through it all again.

Hope everyone is doing ok.

S

Hi Soosie  Thumb sorry the acetretin wasn't for you....I think you have probably been offered Cyclosporine...it's what you mentioned in your thread Change of meds yes all drugs have potential side effects, but not everyone gets them, as we say on here we are all different and react differently to drugs

I'm sorry to hear it has got you down to a point of depression, always feel free to come here and chat, we can relate to the feelings you are having...
Just a little suggestion, you could ask your dermatologist for Fumaderm, the drug I take.....I won't lie and say it's easy to begin with, because you may get some side effects, some do, some don't .....I did but they only lasted for a month or so and they weren't constant, just a couple of times a day with stomach cramps.

Just an idea..... I've been on it five years clear with it ...so I'm biased towards it ...

Give it some thought put Fumaderm in the search facility Search it will throw up mixed results, but if you can get it I would say it's well worth a small struggle to get clearance

As I said at the start ...don't be alone with your feelings, there is a lot of support here
Jim  Bigarm
Quote
JohnB Offline
I wanted to be an Engineer when I grew up, but was told I could'nt do both

100 + Member I Just Cant Stop !
Posts: 4,725
Threads: 36
Joined: Jan 2016
Gender: Male
Location: Lancashire UK
Psoriasis Score: 10
Psoriatic Arthritis Score: Hmm Maybe
PQOLS: 5
Treatment: Otezla/Apremilast & Enstilar occasionally.
#13
Mon-06-03-2017, 08:51 AM
Hi Soosie. Such a shame the Acitretin wasn't for you. I have the brittle nails and my hair has gone slightly curly, but it is the peeling feet that wind me up. As my Ps has receded considerably it is something I can put up with. I'm with Jim the c is most likely Cyclosporin and yes the side effects don't read well, but I wouldn't discount it out of hand, it could help clear you, just remember though it is not a long term therapy and from reading on here the PS tends to bounce back with a vengeance when you stop. I would be requesting Fumaderm it is my next on the list. I am well past messing about with creams.
Quote
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,152
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#14
Mon-06-03-2017, 08:58 AM
Hi Soosie, I had problems with acitretyn as well but I had ingrowing nails , the Cyclosporine did not work for me so I ended up with MTX which did work for me . A lot of people don't like MTX but I was OK on it for a long time and it worked for me but the ideal solution would be to get on a bio, Stelara in my case but it's true to say we are all different so it is difficult to judge whats good for you based on what other people have achieved so have a good discussion with your dermatologist but don't forget it's what you want not what they want.
Quote
« Next Oldest | Next Newest »
Pages (2): « Previous 1 2


Possibly Related Threads…
Thread Author Replies Views Last Post
  Reducing Acitretin Medication - Thoughts? Wooley 86 78,841 Thu-27-08-2020, 14:03 PM
Last Post: D Foster
  Acitretin side effects JohnB 36 49,709 Tue-13-08-2019, 16:19 PM
Last Post: sunnyman
  At what point do you call Acitretin quits? PainInTheGuttate 12 16,175 Fri-14-12-2018, 20:03 PM
Last Post: JohnB
  Newly diagnosed and about to start Acitretin Kentpatient 116 122,612 Sun-09-09-2018, 13:03 PM
Last Post: Kentpatient
  Acitretin/Neotigason & PUVA experience tarny79 10 12,677 Wed-06-09-2017, 20:21 PM
Last Post: Kat



Users browsing this thread: 1 Guest(s)
    About | Contact us | Login | Register | Home | Cookies/GDPR | RSS Syndication | Portal | Types Of Psoriasis | Psoriasis Score | Members Only Boards
    Copyright © 2010 - 2025 Psoriasis Club | All Rights Reserved | Founded May 2010 | Psoriasis Club Is Self Funded Without Sponsors Or Donations | Software by MyBB | Social
Linear Mode
Threaded Mode