Posts: 3
Threads: 1
Joined: Dec 2011
Gender: Female
Location: England
Treatment: fumaderm
 I am starting fumaderm in the new year after trying all the creams, light treatment, methodrexine, cyclosporin, etc and having no luck! I found the side effects of the oral medication horrendous, and am hoping for better luck with this treatment!
Has anybody any helpful tips for a newbie?
Posts: 71,239
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Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
Hello Lian and
Isabelle started a thread here: Fumaderm that may interest you. I haven't seen her around for while, but there are others on that thread too. So it could be worth you posting there.
Regards.
Fred.
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Treatment: Got back to DMF slow release
Hello Lian,
From my point of view, I would say take care.
Be sure to be under control of your doctor and have your blood values regularly checked.
See also the thread Fred mentions.
Cheers,
Caroline
Posts: 3
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Joined: Dec 2011
Gender: Female
Location: England
Treatment: fumaderm
(Wed-28-12-2011, 22:07 PM)caroldanon Wrote: Hello Lian,
From my point of view, I would say take care.
Be sure to be under control of your doctor and have your blood values regularly checked.
See also the thread Fred mentions.
Cheers,
Caroline
Thanks I shall take a look at them! and yes I am under the doctor, have blood tests every two weeks, then when it gets steady, they said will be around once monthly. Hopefully this one works!
Posts: 28,487
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Location: In between the tulips
Psoriasis Score: 3
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PQOLS: 4
Treatment: Got back to DMF slow release
(Thu-29-12-2011, 12:43 PM)Lian Wrote: Thanks I shall take a look at them! and yes I am under the doctor, have blood tests every two weeks, then when it gets steady, they said will be around once monthly. Hopefully this one works! There is a good chance that it will work. I am on a different form of dimethylfumarate and with me it works, even on the other forum where I am there are lots of success stories with dimethylfumarate.
Caroline
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(Wed-28-12-2011, 16:55 PM)Lian Wrote: :huh: I am starting fumaderm in the new year after trying all the creams, light treatment, methodrexine, cyclosporin, etc and having no luck! I found the side effects of the oral medication horrendous, and am hoping for better luck with this treatment!
Has anybody any helpful tips for a newbie? :wave:
Lian
I have previously addressed my use of Fumaderm with Isabelle and would like to share same with you. I have been a severe sufferer for +35 years, have done all except injection therapies. Topical's were never part of my therapy over the years because they were not effective. I had enrolled for clinical studies but was refused because my psoriasis was too severe for their consideration.
I did some research on Fumaderm, shared this with local Doctor and went through the step up program, then after a clearing of psoriasis, stepped down to a maintenance of one 120 mg tablet per day. I do not have any visible signs of psoriasis today, some telltale skin discoloration on the previously affected sites, no side effects, only excellent results. Yes, there was some heart burn, upset stomach, flushing, but tolerable in comparison to itching, flaking, soreness of psoriasis.
For me it has been an absolute miracle. Does everybody achieve the same success? Probably not, but it has worked for me, thus why I think it is worth the try, the endurance, and the reason why I want to share my experience with others. Good luck with your therapy.
William Mateychuk
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Treatment: Got back to DMF slow release
William,
Over here, netherlands, we know that about 80-90% of the psoriasis sufferers have good results with dimethylfumarates.
Great that you are clean with only 120 mg a day !
Cheers
Caroline
Posts: 3
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Joined: Dec 2011
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Treatment: fumaderm
(Tue-24-01-2012, 15:46 PM)Mateychuk Wrote: (Wed-28-12-2011, 16:55 PM)Lian Wrote: I am starting fumaderm in the new year after trying all the creams, light treatment, methodrexine, cyclosporin, etc and having no luck! I found the side effects of the oral medication horrendous, and am hoping for better luck with this treatment!
Has anybody any helpful tips for a newbie? 
Lian
I have previously addressed my use of Fumaderm with Isabelle and would like to share same with you. I have been a severe sufferer for +35 years, have done all except injection therapies. Topical's were never part of my therapy over the years because they were not effective. I had enrolled for clinical studies but was refused because my psoriasis was too severe for their consideration.
I did some research on Fumaderm, shared this with local Doctor and went through the step up program, then after a clearing of psoriasis, stepped down to a maintenance of one 120 mg tablet per day. I do not have any visible signs of psoriasis today, some telltale skin discoloration on the previously affected sites, no side effects, only excellent results. Yes, there was some heart burn, upset stomach, flushing, but tolerable in comparison to itching, flaking, soreness of psoriasis.
For me it has been an absolute miracle. Does everybody achieve the same success? Probably not, but it has worked for me, thus why I think it is worth the try, the endurance, and the reason why I want to share my experience with others. Good luck with your therapy.
William Mateychuk
Thanks for that information. I have been on the tablets for 4 weeks so for, no clearing of the skin yet but hopefully changes will happen soon! I have had stomach cramps at times, but the side affects are not that bad so for, fingers crossed they will stay ok!
Lian
Posts: 28,487
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Psoriasis Score: 3
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Treatment: Got back to DMF slow release
(Wed-25-01-2012, 17:17 PM)Lian Wrote: Thanks for that information. I have been on the tablets for 4 weeks so for, no clearing of the skin yet but hopefully changes will happen soon! I have had stomach cramps at times, but the side affects are not that bad so for, fingers crossed they will stay ok!
Lian
stomach cramps?
Maybe your can use some yoghurt when you take the medication. That transfers it better through you stomach.
Don't worry yet, results can take time, 4 weeks is nothing.
Caroline
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