Posts: 8
Threads: 3
Joined: Aug 2016
Gender: Male
Location: Adelaide South Australia
Treatment: Have tried lots ,last 10 years just a herbal cream which is mainly oils .
Hi
I have been taking 25mg a day now for 2 weeks , so far no side affects  . Have had blood test done and all is well ,Doctor says will need to test blood weekly for about a month and then fortnightly , good thing i don't mind needles .I will update as we go along this journey . Hope every body at PC is well Cheers
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
Posts: 8
Threads: 3
Joined: Aug 2016
Gender: Male
Location: Adelaide South Australia
Treatment: Have tried lots ,last 10 years just a herbal cream which is mainly oils .
Hi its now 4 weeks in with Acitetin and nothing to report . I have been using coconut oil for a week and love it , i now use it day and night and no one has mentioned i smell like a coconut . So onward we go looking forward to summer and shorts . Feeling good about life 
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
(Wed-07-09-2016, 10:01 AM)Wobbly Bobbly Wrote: Hi its now 4 weeks in with Acitetin and nothing to report . I have been using coconut oil for a week and love it , i now use it day and night and no one has mentioned i smell like a coconut . So onward we go looking forward to summer and shorts . Feeling good about life
Great stuff glad you are enjoying coconut oil I hope you got a good virgin one. It is amazing stuff
Good the acetretin is behaving well. And you are feeling positive 
Posts: 71,229
Threads: 4,130
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
(Wed-07-09-2016, 10:01 AM)Wobbly Bobbly Wrote: Feeling good about life
I like logging in and reading good news.
Long may it continue.
Posts: 4,813
Threads: 36
Joined: Jan 2016
Gender: Male
Location: Lancashire UK
Psoriasis Score: 10
Psoriatic Arthritis Score: Hmm Maybe
PQOLS: 5
Treatment: Waiting a decsion
(Wed-07-09-2016, 10:01 AM)Wobbly Bobbly Wrote: Hi its now 4 weeks in with Acitetin and nothing to report . I have been using coconut oil for a week and love it , i now use it day and night and no one has mentioned i smell like a coconut . So onward we go looking forward to summer and shorts . Feeling good about life Good to hear Wobbly . It will take a while before you see any visible improvement, although I did notice a marked reduction of the itching fairly quickly. Hopefully you will miss out on the side effects. Good stuff this coconut stuff.
Posts: 8
Threads: 3
Joined: Aug 2016
Gender: Male
Location: Adelaide South Australia
Treatment: Have tried lots ,last 10 years just a herbal cream which is mainly oils .
Hi week 6 , last 2 weeks seem to be extra itchy , have been thinking orbital sander might be the go . Still using the coco nut oil finding it takes about 10 min and then things settle down , but a part from that all is well loving no big flakes . Hope every one is happy and well
Cheers Wobbly
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
(Tue-20-09-2016, 08:45 AM)Wobbly Bobbly Wrote: Hi week 6 , last 2 weeks seem to be extra itchy , have been thinking orbital sander might be the go . Still using the coco nut oil finding it takes about 10 min and then things settle down , but a part from that all is well loving no big flakes . Hope every one is happy and well
Cheers Wobbly
Glad You are coping down under, but the acetretin seems a bit slow, I can't remember what dose you are on . Is there room for your dermatologist to increase it , as you seem to be tolerating it well
Im glad the big flaking has stopped .... So you're heading in the right direction and summer is nearly with you, as we seem to be finished with it 
Posts: 71,229
Threads: 4,130
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
Hello Wobbly, at least it's working that's the main thing. It can take time to find something that works, but it sounds like you're heading in the right direction.
Glad to hear the coconut oil is helping, I'm a big fan. But "Orbital Sander" that could be dangerous with slippery hands, try using it before the coconut oil.
Posts: 8
Threads: 3
Joined: Aug 2016
Gender: Male
Location: Adelaide South Australia
Treatment: Have tried lots ,last 10 years just a herbal cream which is mainly oils .
Hi on the 23rd sep Doctor upped my rate from 25mg to 50 mg which is nearly 4 weeks ago, the only side affects so far was last week dry lips felt like they were sun burnt . lasted about 5 days and back to normal , my Doctor seems happy with my skin but i am not seeing much change , but still positive about this drug . Been a little stressed my lovely mum in law passed away [ she was a great person ] and also building a house right now , so probably my P is a bit reactive right now . But we is still looking forward to summer
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