[split] Novatretin (Acitretin generic) - anyone else used it? My experience so far...

[Cathy1815]

I have been on Acitretin for 3 months. 25mg a day and am 100percent clear with little side effects.

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Edit By Fred: The posts in this thread were split from: [thread=3436]

[Cathy1815]

Actually I have lost a bit of hearing, dry lips and achy muscles!

[jiml]

Actually I have lost a bit of hearing, dry lips and achy muscles!

That's great news Cathy that you are pretty clear on acetretin
With only slight side effects.... Do you think the hearing loss is due to the acetretin ? Or something else?

[Cathy1815]

Hi Jim

Hope you are well.

Def think the hearing loss is due to acitretin.

Was on Fumaderm last year but couldn't stand the side effects although was mainly clear. It made me so ill.

I have this feeling that won't be able to stay on this for long though.

[jiml]

Hi Jim

Hope you are well.

Def think the hearing loss is due to acitretin.

Was on Fumaderm last year but couldn't stand the side effects although was mainly clear. It made me so ill.

I have this feeling that won't be able to stay on this for long though.

That's a shame Cathy, I hadn't heard if hearing loss linked to acetretin but you may well be right... Has it affected it a large amount ?

Sorry that the Fumaderm didn't work for you ....it can be harsh as you found out, and depending on the severity whether to stop or carry on , I'm sure I was one of the lucky ones with side effects although quite severe they did pass quickly each day ....

I hope you are luckier with the acetretin, but if not pester your dermatologist for a biological drug
Jim

[Fred]

That's a shame Cathy, I hadn't heard if hearing loss linked to acetretin but you may well be right... Has it affected it a large amount ?

Yes it is listed as a common side effect.

[jiml]

That's a shame Cathy, I hadn't heard if hearing loss linked to acetretin but you may well be right... Has it affected it a large amount ?

Yes it is listed as a common side effect.

[gokiddo]

Hi

I am on Acetretin for over a year now. I started on 10mg, then went up to 20mg. I got quite good clearance at 20mg and I was able to stop Dovonex as well, but after 6 months or so I found it coming back and getting worse than ever! I am now up to 40mg with Dovonex twice a day. I would say 80% clear but I am feeling the side-effects a bit. I am hoping they will die down...anyone on Acetretin long term and how they manage the side-effects? Main issue is my fingers and feet - very sensitive to touch and peeling at fingers and palms. My skin is shiny (??) and I have lost hairs on my legs and arms - but I don't really care about that.

I am seeing derm in a couple of weeks so will get them to look then.

[Fred]

Hi

I am on Acetretin for over a year now. I started on 10mg, then went up to 20mg. I got quite good clearance at 20mg and I was able to stop Dovonex as well, but after 6 months or so I found it coming back and getting worse than ever! I am now up to 40mg with Dovonex twice a day. I would say 80% clear but I am feeling the side-effects a bit. I am hoping they will die down...anyone on Acetretin long term and how they manage the side-effects? Main issue is my fingers and feet - very sensitive to touch and peeling at fingers and palms. My skin is shiny (??) and I have lost hairs on my legs and arms - but I don't really care about that.

I am seeing derm in a couple of weeks so will get them to look then.

It may be best to start a new thread in [forum=10] to ask as this thread was originally about Novatretin.

I'll look at splitting this thread to save any confusion.

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Split made the original thread is here: [thread=3436]