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Psoriasis Club › HealthHealth Boards › Psoriasis And Psoriatic Arthritis Topics v
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psoriasis dot org

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psoriasis dot org
Caroline Offline
You must hurry if you ever want to catch a chicken...
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Posts: 26,518
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Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#1
Sat-10-12-2011, 18:41 PM
Just took a look at psoriasis dot org, an american website on psoriasis.
Did not get a well impression. The impression is more that is in fact is driven by pharmacy and that they have all cures and knowledge.
And you and I know that that is impossible and certainly not true.
Bit of an arrogant impression so to feel.

They also have a forum talkpsoriasis dot org, don't know if that is something valuable.

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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
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Posts: 66,958
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Gender: Male
Location: France
Psoriatic Arthritis Score: 1
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Treatment: Bimzelx / Coconut Oil
#2
Sat-10-12-2011, 19:32 PM
It has been around for years, they have done a lot of work in trying to get psoriasis noticed including awareness days however I have to agree with you, I feel they, like most of the others have decided to go for the income from the drug manufacturers. see my thread here: Psoriasis Awareness Campaigns! Are you as confused as me?

The forum used to be very good too until they changed it, I just can't get on with the new one myself.

But at the end of the day they are still doing a good job like the majority of websites. and we are all in it together, working to our goal of support and hopefully a cure. It's the scam sites that we should be careful of.

Anyway the best site out there is a self funded friendly place where people can support and share, without feeling like the big drug companies are running the place. I may be biased but I could recommend psoriasisclub.org
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