Posts: 26,088
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
Welcome Mark to the forum, you should find the answers on here as Fred has put together what I would describe as the most comprehensive information on P/PsA that you will find anywhere . All this is supported by the inmates who ,because they have the problems, can speak from experience not theory , they are all barmy but don't bite with just some of us that are sensible and serous .
All the best Mark, just have a look around and ask away.
Dave
Posts: 4,816
Threads: 36
Joined: Jan 2016
Gender: Male
Location: Lancashire UK
Psoriasis Score: 10
Psoriatic Arthritis Score: Hmm Maybe
PQOLS: 5
Treatment: Waiting a decsion
Welcome Mark
Glad you found us. Sadly we are all in the same boat in having this disease. What you will learn as I did, very quickly is that there is always someone who will be able to guide you or point you in the right direction. Please don't be afraid to ask any questions, there is no such thing as a dumb question on here
.
I read with interest that you were on Acitretin for 15 years there are couple of us on here that are just starting with this medication, would you be willing to share any of your experiences on it? I'm going through the dry lips and fraying hands at the moment but the Ps does seem to be heading in the right direction.
Regards
JohnB
Posts: 4
Threads: 1
Joined: May 2016
Gender: Male
Location: Newark
Treatment: Fumaderm
Hi John,
The Acitretin was good for me. I don't remember the dry lips and nose lasting long. I had to have 3 monthly fasting blood tests to check on my liver and cholesterol level, but other than that just a 6 monthly check up. I was never totally clear of the psoriasis but could fluctuate between 25 mg per day to 50 mg to keep it in check. Only trouble was that only when they found bone spurs on my spine was I told I shouldn't have been on it so long and I should have had annual x-Ray's to check my spine. Worth asking about that if it hasn't been mentioned to you before.
Hope that helps.
Mark
Posts: 670
Threads: 3
Joined: Apr 2016
Gender: Female
Location: Liverpool
Treatment: Nothing
Hello Mark,
Im a little bit new to P club as well, but I know that there are lots of people here with great advice or just to chat to. I have P on the back of my hands and when its really bad I smother them in a good moisturiser and wear cotton gloves, obviously this is done over night.
Im going to try the coconut oil as well so lets know how you get on.
so...Welcome again.
Fifity
Posts: 4,816
Threads: 36
Joined: Jan 2016
Gender: Male
Location: Lancashire UK
Psoriasis Score: 10
Psoriatic Arthritis Score: Hmm Maybe
PQOLS: 5
Treatment: Waiting a decsion
(Sun-15-05-2016, 18:51 PM)mark110660 Wrote: Hi John,
The Acitretin was good for me. I don't remember the dry lips and nose lasting long. I had to have 3 monthly fasting blood tests to check on my liver and cholesterol level, but other than that just a 6 monthly check up. I was never totally clear of the psoriasis but could fluctuate between 25 mg per day to 50 mg to keep it in check. Only trouble was that only when they found bone spurs on my spine was I told I shouldn't have been on it so long and I should have had annual x-Ray's to check my spine. Worth asking about that if it hasn't been mentioned to you before.
Hope that helps.
Mark
Cheers Mark
No the xray bit has never been mentioned. Due back at Dermy in about a months time so will be asking.
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