Introduction of me! I'm Sarah. :)

[SNH8604]

Hi guys! I'm Sarah and I'm 29. Let me just say that I have been looking for a support group like this for a long time!!! I was diagnosed 11 years ago. It runs in my family, but not with my immediate family.... Is that weird? My Gma, aunt, and cousin have it, but they all have plaque, and I have guttate. None of them have tried the drugs that I have. They use topical creams and like to take a more natural approach, as some drugs nowadays have quite the list of side effects. I started with topical, tanning, then enbrel, methotrexate... Both of which didn't work and methotrexate gave me really bad stomach pains. My dermatologist then sent me to a psoriasis specialist. He's amazing! He's one of the lead speakers at the psoriasis association (or something like that) lol But anyways, he put me on humira, which worked, but was a really painful shot. I dreaded it. But, my co pay card eventually ran out, so I stopped taking it... Thinking it was already healed, why would it come back? Boy, was I wrong. It was back and the worst it's ever been. I didn't even want to go to the pool because I was always asked if I had poison ivy. Then, he started me on cosentyx about 4 months ago. It's injection as well. I'm wondering if anyone is on it yet? It's incredible. Everything cleared up within weeks, and the shot is so much less painful. The only problem I have with injections is every couple months, my skin gets flushed. My hands, feet, and legs will feel really hot to the touch and my hands and feet feel really swollen. But it goes away the next day. I was wondering if anyone else had this problem? Anyways, I know I'm rambling. But, any extra information I can gain from everyone, or if there's anything I might be able to help with, I'm here. I Am really happy I stumbled upon this website. Thanks for listening.

[Fred]

Hello Sarah   to Psoriasis Club.

I'm a fan of the bio's my latest one Stelera I've been on for over 5 years. They have given me my life back, and yes I understand some peoples concerns about possible side effects but I've not yet met anyone with anything serious. I would rather take the bio's and eat and drink what I like to have clear skin, it's a lot easier than following a diet which I'm still not convinced of.

We do have some other members on Cosentyx. If you put it in the search button above you will find a lot of information. (*The search button is for members only and you need to be logged-in.)

Don't hesitate to start your own thread about your treatment in Prescribed Treatments For Psoriasis if you wish. It's a good way of keeping track and could help others.

Regards.

Fred.

[jiml]

Hi guys! I'm Sarah and I'm 29. Let me just say that I have been looking for a support group like this for a long time!!! I was diagnosed 11 years ago. It runs in my family, but not with my immediate family.... Is that weird? My Gma, aunt, and cousin have it, but they all have plaque, and I have guttate. None of them have tried the drugs that I have. They use topical creams and like to take a more natural approach, as some drugs nowadays have quite the list of side effects. I started with topical, tanning, then enbrel, methotrexate... Both of which didn't work and methotrexate gave me really bad stomach pains. My dermatologist then sent me to a psoriasis specialist. He's amazing! He's one of the lead speakers at the psoriasis association (or something like that) lol But anyways, he put me on humira, which worked, but was a really painful shot. I dreaded it. But, my co pay card eventually ran out, so I stopped taking it... Thinking it was already healed, why would it come back? Boy, was I wrong. It was back and the worst it's ever been. I didn't even want to go to the pool because I was always asked if I had poison ivy. Then, he started me on cosentyx about 4 months ago. It's injection as well. I'm wondering if anyone is on it yet? It's incredible. Everything cleared up within weeks, and the shot is so much less painful. The only problem I have with injections is every couple months, my skin gets flushed. My hands, feet, and legs will feel really hot to the touch and my hands and feet feel really swollen. But it goes away the next day. I was wondering if anyone else had this problem? Anyways, I know I'm rambling. But, any extra information I can gain from everyone, or if there's anything I might be able to help with, I'm here. I Am really happy I stumbled upon this website. Thanks for listening.

Hi Sarah and a big psoriasis club  to you, if you were looking for a support group you couldn't have found a better one, we are an international club with members from all around the world drawn together by this terrible disease, here we share experiences and ask for and receive support.
You will never get any unpleasantness here we aim to keep the site friendly and honest, with just our experiences and lots of information about the disease and its treatments.

I'm glad your dermatologist has got you on Cosentyx it's proving to be a very effective drug, I hope it keeps working for you , we do have a few members on Cosentyx perhaps some will answer this introduction

I hope you come back often and update us on how the treatment is working and let us know if the side effects calm down

The drug I am on causes flushing it is something I have got used to now and enjoy them during the winter months...

I'm also glad you stumbled upon this site, as your experiences will add to our knowledge and we will always be here to talk about anything

We have an active off topic section where as a member you can come and join in any of the conversations, all newcomers are made very welcome  

[SNH8604]

Thx Fred! You seem to be quite the uplifting spirit and someone that everyone could learn from. And I appreciate all the support! I feel ya on getting your life back... I remember some dark days when I felt trapped in my own skin. I love learning more about how everyone else's treatment is different from one to the next. Thanks for replying! 
-Sarah

[SNH8604]

Thx Jim! And I am loving the cinema sign. ? Thanks for the warm welcome!

[jiml]

Thx Jim! And I am loving the cinema sign. ? Thanks for the warm welcome!

You are welcome if you have any questions or can't find things on the site just shout

The sign is one of many that all members can use in their posts there's a list of them here [Group Specific]

Fred suggested you start a thread in prescribed treatments which would be a great idea if you find the time, I'm guessing where you are from its very early in the morning
But a thread with Cosentyx in the title will get a lot more attention from Cosentyx users.

[Caroline]

Hello Sarah,

Welcome to Psoriasis Club !!!

Finally someone (close to) my age     , and about the same time diagnosed. The only difference is that I have mainly PsA and almost no Psoriasis.
Genetics are a difficult thing, in that sense that diseases may skip the one brother or sister but may turn up in the other even in a different way. It is even the place where Darwin went wrong in his ideas on evolution, but it has been corrected.

I wish you a very good time over here with us. It is a fun group to be with. Some are even pretending to be sensible, but I have my thoughts on that . One thing is certain, everyone is very friendly and still we can have our interesting discussions on psoriasis or on anything else in the Off Topic section.

Enjoy !

Caroline

[Fred]

Thx Fred! You seem to be quite the uplifting spirit and someone that everyone could learn from. And I appreciate all the support! I feel ya on getting your life back... I remember some dark days when I felt trapped in my own skin. I love learning more about how everyone else's treatment is different from one to the next. Thanks for replying! 
-Sarah

Oh I have my moments Sarah but I do try to keep as positive as possible because it does help.

As for learning from me I wouldn't recommend that  

[Caroline]

Thx Fred! You seem to be quite the uplifting spirit and someone that everyone could learn from. And I appreciate all the support! I feel ya on getting your life back... I remember some dark days when I felt trapped in my own skin. I love learning more about how everyone else's treatment is different from one to the next. Thanks for replying! 
-Sarah

Oh I have my moments Sarah but I do try to keep as positive as possible because it does help.

As for learning from me I wouldn't recommend that  

Fred and I are known to have our arguments and seldom agreements, but see ... On this element we suddenly agree

[Fred]

Fred and I are known to have our arguments and seldom agreements, but see ... On this element we suddenly agree