Why some countries play with their own psoriasis treatments

[mataribot]

Overpriced DMF should be on it's way overseas after it hits the market here hopefully that doesn't effect you guys.

Caroline I had a flare of good old psoriasis and two year old that decided hisbed time is 5 am.

[Fred]

Fred, I'll try to explain it better- I think my writing skills need improvement. Let's just pick a topic like methotrexate and alcohol. We all know that it shouldn't be done, but research has shown that small amounts of alcohol and MTX is fine. Any pysician is going to give a warning about MTX and alcohol. Socially inappropriate behavior would be comming to this forum and asking If it is safe, without consulting the pysician first. It's not the medium that's the problem, its the intention of the pantient that is not acceptable.

No your writing skills are fine Matari Im understanding what you are saying, I'm just not grasping the thought of it being inappropriate to ask if another member thinks it's safe to drink whilst on methotrexate (to use your example) I still see nothing wrong with it myself.

On a side note as you mention methotrexate and alcohol, here they advise you to limit your alcohol whilst on it. And when I was in dermatology for a week once I was given a glass of wine with my meal as where those on methotrexate.

Hi Fred,

I have private health insurance, but as there is no way I could be treated with DMF via a specialist in Australia, I self-medicate. It is unfortunate that what should be a front-line treatment for sufferers here is unavailable. Fortunately I have had good results and the money I spend on DMF and associated testing is less than I spent on topical therapies and pain killers. I'd spend far more on alcohol.

Thank you Bill I must admit I'm still following your progress with great interest and have been tempted a couple of times to give it a go, but it's the fear of making the move and possibly loosing my right to treatment later should it not work.

I did like the sound of your salad though.

[mataribot]

Fred, there two different trials here for for drugs that contain DMF and psoriasis and there will be soon for PsA. Currently, there is no evidence to support that DMF works for axial diseases. It'll be interesting to see how this pans out.

[jiml]

Indeed it will be interesting ... are you thinking of applying for the trial?
Methinks we are straying off topic though  

[mataribot]

Jim, I am not interested in trials for various reasons. So far I am impressed with Cimzia. Going to ride this one out. My dermatologist made me stick through Stelara and I am glad it did. Besides I am eligible for the trial because of multiple TNFs failed...

[jiml]

Jim, I am not interested in trials for various reasons. So far I am impressed with Cimzia. Going to ride this one out. My dermatologist made me stick through Stelara and I am glad it did. Besides I am eligible for the trial because of multiple TNFs failed...

I'm glad you are getting on with your treatment.. But its good to know before long there will be more options for you

[Caroline]

Hi Matari,

Ah, that explains why you were awake at that time.


Hi Bill,

Eh... Did I point you to DMF ? I was not aware of that.

Very interesting observation on taking the drug with a salad. We must put this info in the DMF thread. Very tasteful also!

Caroline

[Fred]

Can we try to keep on topic please and ask that you carry on your DMF conversations here: [split] Dimethylfumarates and Psoriasis  

The original question at the start of the thread was: What do you think about your health care systems and if or why you would be prepared to use your own treatment for psoriasis.

Thank you.

[Fred]

If you're looking for new posts in this thread they have been removed and the member banned.

Our sign up agreement clearly states.

No recruitment of our members.
No promoting other websites.
No links.

Said member obviously didn't like our rules so has been thrown out the door.