palmo plantar psoriasis

[Denise]

Hi. New to this, usually suffer alone drenched in self pity. Had a bout of above disgusting disease in 1993 till 1997 which inexplicably disappeared when my son was born only for it suddenly to return in all its glory last year. Im 58 yrs old, been taking acetretin this time round and its been a miracle drug, at least on the outside, i can walk (though not as far as i could when i didnt have ppp) and use my hands fairly normally. Thats such a blessing, but i still feel like a monster. How i envy those who can take all this in their stride. Side effects are many but mostly light and livable with. Anyone else hate with a vengeance bloody zipzok. So...i dread if i ever have to come off the medication. Hoping for another remission but dont know why it happened in the first place. Anyway this is me. Just wanted to introduce myself xxx

[jiml]

Hi. New to this, usually suffer alone drenched in self pity. Had a bout of above disgusting disease in 1993 till 1997 which inexplicably disappeared when my son was born only for it suddenly to return in all its glory last year. Im 58 yrs old, been taking acetretin this time round and its been a miracle drug, at least on the outside, i can walk (though not as far as i could when i didnt have ppp) and use my hands fairly normally. Thats such a blessing, but i still feel like a monster. How i envy those who can take all this in their stride. Side effects are many but mostly light and livable with. Anyone else hate with a vengeance bloody zipzok. So...i dread if i ever have to come off the medication. Hoping for another remission but dont know why it happened in the first place. Anyway this is me. Just wanted to introduce myself xxx

Hello Denise and thanks for finding us   to the forum, you have found a good place to discuss the ups and downs of the disease. I can relate to the feeling of disgust and self pity at having this awful disease, but here you will find a great bunch of sufferers who deal with it in different ways, I find it good to come here and mingle and chat with other sufferers, it's nice to be part of a community that knows about the psychological side as well as the visible side of the disease and how it affects us,
I hope you get as much from the club as I do, .....by coming here regularly as I do it shows you that you  are not the only one with the disease and you certainly will never be alone for long on here, also you will never be bothered by spam, bullying, advertising  or any internet nasties.  We are just sufferers sharing experiences which I believe is unique.

I have not had PPP and have been a sufferer with plaque psoriasis all my adult life and I'm a lot older than you ( OK 10 years if I don't tell you someone will) it has only been since I got onto my Fumaderm tablets over three years ago that I have had any length of time clear.
If you do ever have to come off the Acetretin there are now many more drugs in the armoury of the dermatologist which will have as good if not better effect on your psoriasis....
So enjoy yourself on the club, come and chat anytime, there is a lively off topic board with lots of things to join in with if you want or just read and have a chuckle at, there is chatting thread and you are more than welcome to jump in we all welcome newcomers with open arms  
Any questions just ask someone will have an answer

[Denise]

Hi jiml. Hope i spelled that right. Thanks so much for the warm welcome. Glad i found this site. Only 'we' can understand each other. Its a very pushed into a corner and forget about us disease isnt it. Even at the hospital they dont want to talk about side effects or how it affects your life mentally. I was told theres a lot of people much worse off than you, in other words get on with it and stop whining. Which i agree there definetely will be but at least listen to me for two minutes please cos this is personal and life altering. Anyway, again thanks for the welcome xxx

[jiml]

Hi jiml. Hope i spelled that right. Thanks so much for the warm welcome. Glad i found this site. Only 'we' can understand each other. Its a very pushed into a corner and forget about us disease isnt it. Even at the hospital they dont want to talk about side effects or how it affects your life mentally. I was told theres a lot of people much worse off than you, in other words get on with it and stop whining. Which i agree there definetely will be but at least listen to me for two minutes please cos this is personal and life altering. Anyway, again thanks for the welcome xxx

I'm glad you found us and yes Jim is the name but called all sorts on here, you will never be pushed aside here, yes there are people worse off, but that's an irrelevance to us and doesn't help to be told.
The mental effects of constantly staying covered and hiding the disease plus the itching and scaling and in many cases pain together with low self esteem. Is a real factor and should be treated with the disease, as you say it wouldn't do any harm for them to listen ...... Well we do listen ... And I believe dermatologists are now taking the mental side into consideration when deciding on a medication..
There are many studies reported on here on the quality of life and how psoriasis affects it.
So I try to stay positive and think the future for us and the following generations of sufferers won't be left to " get on with it "
So again come back often and enjoy the treats on offer
Jim

[Fred]

Hello Denise   to Psoriasis Club.

You no longer need to suffer alone, there is always someone around who will be happy to listen. We have a few other members with Pustular, Amanda and Brighteyes come to mind they are always happy to share.

We also have some on Acitretin and I'm pleased to hear it's working for you, don't hesitate to start a thread in Prescribed Treatments For Psoriasis about your journey and update it as you go.

Like Jim said you will find us a friendly bunch so just dive on in, and also like he said "No one will push you aside" if they do you let me know as I have a secret red button that will send them down to the cellar.  

Regards.

Fred.

[mataribot]

Hello and welcome! Your post "nailed it" so to speak. The worst part of this disease is finding treatment that works, only to have to come off it and watch the disease slowly but surely come back.

[Grizzly Bear]

Hello & Denise

I'm the insane sane one on here, and what ever the others tell you on here, it's all chuffin fibs lass.

You will find a wealth of information on here, good stories, bad stories etc on Psoriasis Denise.  

So, when you want to play on the swings on here, come & join us  


So be xmas Denise.............






GB

[Caroline]

Hi Denise,
Let me for once introduce myself as being the one sane person on this forum.   but I guess you don't believe that. But for sure is that  I'm the fastest one.
What's most important be welcome on this forum, we have A lot of fun together  so I hope you will join in. Of course we have a nasty disease but this doesn't mean that we have to be too sad for ourselves.

Cheers
Caroline

[Kat]

Welcome Denise!

Acitretin worked for me as well. This is a great group that totally understands the ups and downs of this disease. Glad you found us!

[Brighteyes]

I also have PPP (amongst other types).
Struggled mentally, physically and emotionally (all well documented on here).
I hear and share your frustration so anytime you want to let rip just go for it.