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Psoriasis Club › HealthHealth Boards › Psoriasis In The News v
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Queen Mary University to develop a targeted approach to psoriasis treatment

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Queen Mary University to develop a targeted approach to psoriasis treatment
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,501
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#11
Fri-29-11-2013, 22:27 PM
(Fri-29-11-2013, 22:19 PM)jiml Wrote:
(Fri-29-11-2013, 21:58 PM)Caroline Wrote:
(Fri-29-11-2013, 21:20 PM)jiml Wrote:
(Fri-29-11-2013, 20:25 PM)Fred Wrote:
(Fri-29-11-2013, 20:03 PM)Caroline Wrote: Hope they will look at DMF, using out of the box thinking, but they probably will not as industry is involved. :(

Not likely Caroline it's the UK.

They might at least look at Fumaderm as I know we are using that maybe not DMF I don't know if DMF is used over here I will be asking the question of my dermatologist soon
Jim.....
The working substance of Fumaderm IS DMF. Doh

Men...

Caroline

I thought you said there was a difference in the coatings
I am a bit dim but you are not on Fumaderm so there must be some difference?
Jim,

No, I am not on Fumaderm. I am on Psorinovo.
BUT..... Of both medicines the working substance, the fact that we both have minor problems, is because of the dimethylfumarate. That is the really working substance !

The difference are the additives in fumaderm, which do nothing against psoriasis, only protect your stomach. And psorinovo uses a coating and slow release for that, and therefore has no additives.

Caroline
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#12
Fri-29-11-2013, 22:37 PM
(Fri-29-11-2013, 22:27 PM)Caroline Wrote:
(Fri-29-11-2013, 22:19 PM)jiml Wrote:
(Fri-29-11-2013, 21:58 PM)Caroline Wrote:
(Fri-29-11-2013, 21:20 PM)jiml Wrote:
(Fri-29-11-2013, 20:25 PM)Fred Wrote: Not likely Caroline it's the UK.

They might at least look at Fumaderm as I know we are using that maybe not DMF I don't know if DMF is used over here I will be asking the question of my dermatologist soon
Jim.....
The working substance of Fumaderm IS DMF. Doh

Men...

Caroline

I thought you said there was a difference in the coatings
I am a bit dim but you are not on Fumaderm so there must be some difference?
Jim,

No, I am not on Fumaderm. I am on Psorinovo.
BUT..... Of both medicines the working substance, the fact that we both have minor problems, is because of the dimethylfumarate. That is the really working substance !

The difference are the additives in fumaderm, which do nothing against psoriasis, only protect your stomach. And psorinovo uses a coating and slow release for that, and therefore has no additives.

Caroline

Thanks for the explanation Caroline I now know the difference and will check if psorinovo is available in the UK Thumb
Quote
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,501
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#13
Fri-29-11-2013, 22:40 PM (This post was last modified: Fri-29-11-2013, 22:46 PM by Caroline.)
(Fri-29-11-2013, 22:37 PM)jiml Wrote:
(Fri-29-11-2013, 22:27 PM)Caroline Wrote:
(Fri-29-11-2013, 22:19 PM)jiml Wrote:
(Fri-29-11-2013, 21:58 PM)Caroline Wrote:
(Fri-29-11-2013, 21:20 PM)jiml Wrote: They might at least look at Fumaderm as I know we are using that maybe not DMF I don't know if DMF is used over here I will be asking the question of my dermatologist soon
Jim.....
The working substance of Fumaderm IS DMF. Doh

Men...

Caroline

I thought you said there was a difference in the coatings
I am a bit dim but you are not on Fumaderm so there must be some difference?
Jim,

No, I am not on Fumaderm. I am on Psorinovo.
BUT..... Of both medicines the working substance, the fact that we both have minor problems, is because of the dimethylfumarate. That is the really working substance !

The difference are the additives in fumaderm, which do nothing against psoriasis, only protect your stomach. And psorinovo uses a coating and slow release for that, and therefore has no additives.

Caroline

Thanks for the explanation Caroline I now know the difference and will check if psorinovo is available in the UK Thumb
You can check, but it is not.
You can only get it at Steunpunt Apotheek Mierlo-Hout, at Mierlo-Hout, in the Netherlands. They will send it abroad if you order it there though. Only problem is the insurance of course.

There is more to explain but I've had it for today, so I am going to sleep.
You could take a look at the website [web]www.psoriasistherapie dot nl[/web] though, it is Dutch you can find English information there.

Sleep well to you and to the others online!
Caroline.
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#14
Fri-29-11-2013, 22:54 PM
(Fri-29-11-2013, 22:40 PM)Caroline Wrote:
(Fri-29-11-2013, 22:37 PM)jiml Wrote:
(Fri-29-11-2013, 22:27 PM)Caroline Wrote:
(Fri-29-11-2013, 22:19 PM)jiml Wrote:
(Fri-29-11-2013, 21:58 PM)Caroline Wrote: Jim.....
The working substance of Fumaderm IS DMF. Doh

Men...

Caroline

I thought you said there was a difference in the coatings
I am a bit dim but you are not on Fumaderm so there must be some difference?
Jim,

No, I am not on Fumaderm. I am on Psorinovo.
BUT..... Of both medicines the working substance, the fact that we both have minor problems, is because of the dimethylfumarate. That is the really working substance !

The difference are the additives in fumaderm, which do nothing against psoriasis, only protect your stomach. And psorinovo uses a coating and slow release for that, and therefore has no additives.

Caroline

Thanks for the explanation Caroline I now know the difference and will check if psorinovo is available in the UK Thumb
You can check, but it is not.
You can only get it at Steunpunt Apotheek Mierlo-Hout, at Mierlo-Hout, in the Netherlands. They will send it abroad if you order it there though. Only problem is the insurance of course.

There is more to explain but I've had it for today, so I am going to sleep.
You could take a look at the website [web]www.psoriasistherapie dot nl[/web] though, it is Dutch you can find English information there.

Sleep well to you and to the others online!
Caroline.

Goodnight Sleep Caroline sweet dreams
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 66,918
Threads: 3,887
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#15
Sat-30-11-2013, 00:12 AM
(Fri-29-11-2013, 21:47 PM)jiml Wrote: Not sure if it's available to all but it has been prescribed for a few in Norwich I am told.
I would doubt if Norwich is the only area that prescribes it.
Any other UK members let us know if you have had it

Thanks Jim, if anyone else knows more please start a new thread as it helps others find relevant stuff on search engines. Wink
Quote
Justin-UK Offline
Member


Posts: 18
Threads: 3
Joined: Nov 2013
Gender: Male
Location: UK
Psoriasis Score: 28
Treatment: phototheropy
#16
Sat-30-11-2013, 00:20 AM
I have appointment with my dermatologist on Monday for my first session of phototherapy so I will ask then, and if any thing else anyone wants to know? I will also tell her about this site, hopefully she can pass it on to others. I didn't really have much info on P so this site has helped me lots.... Even if it is knowing other people are going through it.

Just a small question though, has anyone had photopherapy? What's it like?...teeny bit nervous.
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#17
Sat-30-11-2013, 01:33 AM
(Sat-30-11-2013, 00:20 AM)Justin-UK Wrote: I have appointment with my dermatologist on Monday for my first session of phototherapy so I will ask then, and if any thing else anyone wants to know? I will also tell her about this site, hopefully she can pass it on to others. I didn't really have much info on P so this site has helped me lots.... Even if it is knowing other people are going through it.

Just a small question though, has anyone had photopherapy? What's it like?...teeny bit nervous.

Don't be nervous it will not hurt a bit. My last time having it was about 10 years ago. I have asked for it since, but I am told I have had my lifetime limit. Hence I am on tabs.
You will find after a couple of weeks you will be sporting a fine tan and hopefully the psoriasis will have receded, and you will be happy taking your shirt off and showing the missus and anyone else that cares to look Thumb

You can if you want when you see your dermo print off a small poster from Fred's page "Support psoriasis club " Smile and ask if you can pin it up or perhaps she may like to keep it for reference
Quote
Justin-UK Offline
Member


Posts: 18
Threads: 3
Joined: Nov 2013
Gender: Male
Location: UK
Psoriasis Score: 28
Treatment: phototheropy
#18
Sat-30-11-2013, 11:16 AM
Will print off the poster ready to take Smile
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#19
Sat-30-11-2013, 12:05 PM
(Sat-30-11-2013, 11:16 AM)Justin-UK Wrote: Will print off the poster ready to take Smile

Thumb good man
Quote
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