living with P.

[Danny]

Hi being a newbe here I thaught I might tell you about my experencecwith P.
I was first dianosed about 12 years ago by the derm at the VV hosp in Little Rock . at first at was location I felt like a grease pig . Made such a mess the wife and I got twin beds .
so I started looking on line to see what other people were doing it seemed like everyonecwas serching just like me.
so we bought a jet bathtub and then the hours of soaking in eoson salt baths with joy dish soap.
so now I'm getting to be a geeneypig with a lot of different med's and creams even oat meal baths . Now theyvsaid they was put me on MTX and it seemed to help a little till it really messed up my lungs big time yes they had a name for it called medical fibrouis caused from be alergic to MTX .
wellthen I was putcin my handicap scooter and 24 hour oxagon .told mei had only about on year to live .. .. that sceared the heck out of the wife and me.
then they put me on enbedal which didn' seem to help.
now 12 year later I'm on humeria that seem to be my merceral drug . no side effects and 95% P.free.
well I'm out of the wheel chair and and only oxagen when I need mostly when I sleep . I thank the good Lord everyday for giving my life back .
now you know the rest of the story .

[Danny]

I tried to edit my post butvthey wouldn't let me sorry . I did edit it but when I tried to post all it done was mess it up the I couldn' t delete it . so I will be leaving the forum .

[Caroline]

I tried to edit my post butvthey wouldn't let me sorry . I did edit it but when I tried to post all it done was mess it up the I couldn' t delete it . so I will be leaving the forum .

Danny, the fact you cannot change your post is due to the fact you have less than five posts. After you have more you can change you posts, for a specific time.
It would be a shame to leave the forum so quickly, now we in fact have just met.

Caroline

[Fred]

I tried to edit my post butvthey wouldn't let me sorry . I did edit it but when I tried to post all it done was mess it up the I couldn' t delete it . so I will be leaving the forum .

Caroline is correct members with less than 5 posts can not edit a post and after that you get 5 minutes after posting to make an edit.

The reason for this is because we had problems with people editing post later to add spam! No member can delete a thread as it would not be very helpful to others if they found a link in a search engine but the thread had gone.

If you want to tell me what edit you wanted I can do it for you, or you can start a new thread in the [Group Specific] and when you are happy with it, let me know and I can move it for you.

Whilst I'm here Danny, I'm still waiting for a response on your other problems here: RE: newbie !

I try to answer all members problems with the forum and I'm willing to listen, but I run Psoriasis Club on my own and have to have some rules in place to keep Psoriasis Club spam free.

I'm sorry you feel like leaving us so soon, but I can't please everyone.

Regards.

Fred.

[Danny]

yes but a lot of us eldly people have bad eyes or some kind of disabity and ee have to edit . looks like you would look into the problem instead of just kissing them off. GOD BLESS HAVE A GOOD DAY.

[Fred]

instead of just kissing them off.  

Certainly wouldn't do that to you. Spammers, Bullies, & Trolls do get shown the door, but genuine people with psoriasis are very welcome here as their input can be of great help to others.

I notice you have made more than 5 posts, so you should now be able to edit your post within 5 minutes. Another tip that may help is, when you are composing your post if you push the button in the middle marked "Preview Post" you will be able to see how it will look before actually posting it.

Regarding your other problem with the colour I did answer and suggested you may want to try the Light Archive Mode till I get round to making a new default theme.

Please don't hesitate to contact me if you have a problem with the forum, I will do my best to resolve it.

You have a good day too.

Fred