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Psoriasis Club › HealthHealth Boards › Psoriasis In The News v
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Dutch psoriasis patients satisfaction with treatment

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Dutch psoriasis patients satisfaction with treatment
Fred Online
I Wanted To Change the World But Got Up Far Too Late.
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#1
News  Tue-09-04-2013, 10:40 AM
This is a study published in the British Journal of Dermatology from a Dutch web-based survey about treatment satisfaction.

Background:
Various psoriasis treatments are currently available: topical therapy, photo(chemo)therapy, oral agents, and biologicals. Little is known about patients’ satisfaction with these treatment options. Moreover, the few available studies show methodological shortcomings.

Objectives:
The present study aims to answer the following questions: 1a) How satisfied are psoriasis patients with their current treatment?; 1b) Does patients’ satisfaction significantly differ between treatment types when controlling for demographic and clinical factors?; 2a) How important are specific domains of satisfaction to patients?, and 2b) When taking perceived importance into account, which domains merit the most attention in improving quality of care?

Methods:
Members of the two existing Dutch psoriasis patient associations were invited to complete a web-based survey, which included a study-specific satisfaction questionnaire.

Results:
1293 patients completed the survey (response rate 32%). Overall, patients were moderately satisfied with their current treatment. Patients receiving topical treatment were significantly least satisfied; patients receiving biological treatment were significantly most satisfied. Overall, patients rated ‘treatment effectiveness’ as most important, followed by ‘treatment safety’ and ‘doctor-patient communication’. Domains with the highest ‘room for improvement’ scores were: 1) effectiveness of topical therapy, phototherapy and oral agents, but not biological treatment, 2) convenience of topical treatment, and 3) safety of systemic treatments (both oral agents and biological).

Conclusions:
From the patients’ perspective, biological treatment is promising. To further improve the quality of psoriasis care, the effectiveness and convenience of topical therapies, the safety of systemic therapies, and doctors’ communication skills need to be addressed.

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leopardless Offline
leopardless


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#2
Tue-09-04-2013, 16:41 PM
Fred,

I will read this later on......a homeopathist I know likes porcine it is used in armour thyroid... but my a foresenic MD doesn't I felt fantastic when I took armour thyroid.. He is admant that porcine causes thyroid cancer and should be used if one has their thyroid removed.....and synthroid is not working.

this may have nothing to do with the article... I look forward to reading the article later...

Thanks

LL
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Caroline Offline
You must hurry if you ever want to catch a chicken...
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Treatment: Got back to DMF slow release
#3
Wed-10-04-2013, 11:08 AM
My opinion is not included in this study Smile
Was totally unaware of this one. Would be interesting to analyse the whole of the studies in a statistical way.
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Fred Online Author
I Wanted To Change the World But Got Up Far Too Late.
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#4
Wed-10-04-2013, 13:05 PM
(Wed-10-04-2013, 11:08 AM)Caroline Wrote: Would be interesting to analyse the whole of the studies in a statistical way.

Sorry can't get more than that without paying for the full document, though sometimes they are released free after a few months.

I don't know if this is related to the same people surveyed, it's about a Nail Psoriasis survey from the Dutch Psoriasis Association.

Quote:
Background:
Skin manifestations are the most characteristic finding of psoriasis. However, nail involvement is also a clinical feature of disease although it is often overlooked. The documented prevalence of nail psoriasis varies between 10.0 and 81.1%.

Objective:
The aim of this investigation was to gain knowledge about the prevalence and clinical manifestations of nail psoriasis and patient experiences on treatment of nail psoriasis.

Method:
A structured self-administered questionnaire was distributed to all members (n=5400) of the Dutch Psoriasis Association. The questionnaire enquired about socio-demographic patient characteristics, disease-related data and treatment of nail psoriasis. Patients reported their nail manifestations after instruction with photographs. Patients with nail psoriasis were compared to patients without nail psoriasis.

Results:
A response rate of 27% was achieved. The prevalence of nail psoriasis was 66.0%. The most frequently observed psoriatic nail manifestation was pitting (65.4%), whereas red spots in the lunula were infrequently seen (6.5%). Patients with nail psoriasis more frequently stated psoriasis capitis (75.8 vs 65.7%), genital psoriasis (32.7 vs 20.3) and psoriatic arthritis (46.4 vs 30.6) compared to psoriatic patients without nail involvement. Only 16.0% of patients received treatment for nail psoriasis. Systemic therapies were most frequently stated as effective for nail lesions.

Conclusion:
Nail manifestations seems to be more prevalent in psoriatic patients than previously thought. In addition, nail psoriasis shows to be associated with widespread and more severe forms of psoriasis and different treatment options are experienced as effective for nail psoriasis. Notwithstanding, nail psoriasis is still an often overlooked feature of the disease.
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