Health Boards
Tue-29-11-2016, 11:54 AM
First of all thanks for all your replies and the warm welcome. I wish I found this place when I was younger and suffered with borderline depression due to my symptoms.
Back to the Acitretin - I was in a position where my mum works in a Drs surgery with an experienced derm so asked for some further advice. I felt much better - they explained the hair loss and some of the other more severe symptoms are rare so I bit the bullet. After just over 2 weeks , I noticed some side effects which seems to be normal and not getting noticably worse - dry lips and knuckles, minor wrinkling on my fingertips, I seem to be quite thirsty a lot of the time too? The guttate on my hands seems to becoming more 'plaquey' if this make sense and the patches of plaque seem to be a lot worse - after exercise my plaque used to smooth off for some reason but now it doesn't change at all. The patches on the inside of my legs felt quite sore recently too. I had some minor nausea in a morning when travelling to work which quickly subsided (normally when I've had eggs for breakfast?) and one day with a severe headache but I'm not sure if these were related.
I've been combatting some of the side effects in several ways -
I've been exercising a lot more and watching what I am eating - I've tried to change my lifestyle as much as possible, unfortunately I do enjoy a good drink but I'm more conscious about how much I am not drinking. I'm not sure if this is a side effect but I seem to be building muscle quicker? I quit smoking last year too and chnaged to an E-cigarette so I'm feeling ym fittest in around 2 years at the minute!
Diprobase - using this as a shower gel every morning and following the gym. I've never been a fan of creams as they stick to your clothes, however by lathering on the diprobase thick a few minutes before a shower then washing off in a morning it seems to be working ok. I've also used this on this inside leg latches when they felt sore. I can see this being important in the coming months.
Dovobet gel - The consultant I saw tried to get my Enstiler (not sure if I spelt it right) but my GP prescrbed Dovobet gel for use. I've always hated Dovobet regardless if it's cream or gel so I've used this sparingly so far - I had a bad rebound of steroid creams so try to avoid if possible.
Vaseline Aloe Vera lip balm - I think a combination of Acitretin and the cold UK winter setting in has had a bad effect on my lips - this has been a life saver. I've had some minor cracking but the Vaseline has been ace so far.
kh294 - thanks for the advice on Toppik - I think this is an American brand so I will see if there is a UK alternative. The derm said that as a healthy 30 year old that unless I have a bad reaction to only expect minor thinning but I'm getting to that age where I need to start taking care of my hair!
My initial anxiety has disappeared and I'm feeling very positive about the future on Acitretin. A few questions - I am going to Thailand in March for my best friends wedding, for people who have taken/taking Acitretin, what was your Psoriasis looking like after 4 months on Acitretin? The derm told me that they normally combine Acitretin with UV treatment with good results, has anyone had any experience how Psoriasis reacted to natural UV? I tan really well when I use suncream (SP15 upwards) but when I don't use I burn really bad so I'm already researching suncreams.
Sorry for the long post!
Thanks
Back to the Acitretin - I was in a position where my mum works in a Drs surgery with an experienced derm so asked for some further advice. I felt much better - they explained the hair loss and some of the other more severe symptoms are rare so I bit the bullet. After just over 2 weeks , I noticed some side effects which seems to be normal and not getting noticably worse - dry lips and knuckles, minor wrinkling on my fingertips, I seem to be quite thirsty a lot of the time too? The guttate on my hands seems to becoming more 'plaquey' if this make sense and the patches of plaque seem to be a lot worse - after exercise my plaque used to smooth off for some reason but now it doesn't change at all. The patches on the inside of my legs felt quite sore recently too. I had some minor nausea in a morning when travelling to work which quickly subsided (normally when I've had eggs for breakfast?) and one day with a severe headache but I'm not sure if these were related.
I've been combatting some of the side effects in several ways -
I've been exercising a lot more and watching what I am eating - I've tried to change my lifestyle as much as possible, unfortunately I do enjoy a good drink but I'm more conscious about how much I am not drinking. I'm not sure if this is a side effect but I seem to be building muscle quicker? I quit smoking last year too and chnaged to an E-cigarette so I'm feeling ym fittest in around 2 years at the minute!
Diprobase - using this as a shower gel every morning and following the gym. I've never been a fan of creams as they stick to your clothes, however by lathering on the diprobase thick a few minutes before a shower then washing off in a morning it seems to be working ok. I've also used this on this inside leg latches when they felt sore. I can see this being important in the coming months.
Dovobet gel - The consultant I saw tried to get my Enstiler (not sure if I spelt it right) but my GP prescrbed Dovobet gel for use. I've always hated Dovobet regardless if it's cream or gel so I've used this sparingly so far - I had a bad rebound of steroid creams so try to avoid if possible.
Vaseline Aloe Vera lip balm - I think a combination of Acitretin and the cold UK winter setting in has had a bad effect on my lips - this has been a life saver. I've had some minor cracking but the Vaseline has been ace so far.
kh294 - thanks for the advice on Toppik - I think this is an American brand so I will see if there is a UK alternative. The derm said that as a healthy 30 year old that unless I have a bad reaction to only expect minor thinning but I'm getting to that age where I need to start taking care of my hair!
My initial anxiety has disappeared and I'm feeling very positive about the future on Acitretin. A few questions - I am going to Thailand in March for my best friends wedding, for people who have taken/taking Acitretin, what was your Psoriasis looking like after 4 months on Acitretin? The derm told me that they normally combine Acitretin with UV treatment with good results, has anyone had any experience how Psoriasis reacted to natural UV? I tan really well when I use suncream (SP15 upwards) but when I don't use I burn really bad so I'm already researching suncreams.
Sorry for the long post!
Thanks