Bill's pure dimethylfumarate thread

[Bill]

Good to hear from you IITT. Diethyl fumarate is a liquid at room temperature, so whilst you may have a pure product, it is useless for your disease and could harm you. Dimethyl fumarate is what you want, so be sure that is what you get. You should at least have a blood test before taking the drug to check your blood parameters, liver and kidney function. Ongoing blood tests are also very necessary as your lymphocyte count can fall dangerously low. I have found that topical treatments and sunlight are very helpful adjuncts to DMF treatment.

With the benefit of hindsight, I would probably start taking DMF as a 100mg dose every second day and I would increase the dose by 100 mg weekly provided the side effects were tolerable. Ideally, topicals, sun and ocean swims should accompany your treatment. While you are increasing the dose in this fashion you should have monthly blood tests. For me, an 800 mg dose is as much as I can stomach, even with cysteine pre-dosing, and if I take this amount more than twice a week my lymphocytes will drop too low.

I do not endorse doing what I do, and would recommend reading extensively about DMF therapy before commencing self-treatment. Most importantly you require medical oversight. Without this you are at serious risk.

Please start your own thread and introduce yourself. You will find the people here very caring and helpful.

Good luck,

Bill