Health Boards
Sat-12-03-2016, 01:32 AM
8March 2016
Today I have been to my doctor for my 3 monthly hormone injection, I hope I don't have many more of these to have
We had a discussion as he had seen a copy of the letter from the rheumatologist and he said I understand you are going to come off your current treatment.......Fumaderm
I said no it's not likely to happen unless the rheumatologist can give me a good reason to come off it.
We then had a discussion regarding Fumaderm versus Methotrexate.
He understood my point of view although he said I might have more difficulty convincing the rheumatologist
The good thing is my bloods are good and the lymphocyte count is up to 1.49
I am due to see the dermatologist on Friday and hear his opinion on how to progress with my treatment
I have a couple of plaques appeared in my right side they are small and no longer producing scales
11 March 2016
just got back from a meeting with the dermatologists " assistant " today and he was reading through the letter the rheumatologist sent me .....he asked if we should do what the rheumatologist had suggested .....
What ...... I asked if anyone was listening to me ...and NO I am not going back onto methotrexate...he said where does that leave us, I said why don't we try my suggestion and up my dose of Fumaderm and see if it works..( he scurries out to have a word with the boss the proper dermatologist) when he returns he waffles on about there not being evidence of it working on psoriatic arthritis ...... I said well there won't be if you pull the plug when it's suggested.....
I told him of the forum and people here on DMF treatments for PsA. But he was not prepared to raise my dose for fear of side effects...... I pointed out to him that I am having monthly blood tests and my levels are good and if I develop low blood count or increased creatinine we could reduce the dose as with Fumaderm all these effects are reversible........he wasn't listening ....his boss had told him one thing and he wasn't for shifting
I asked him where do we go from here? He said continue on my present dose till I see the rheumatologist in July or take methotrexate .....I said I would rather stick needles in my eyes... We agreed we weren't getting anywhere
So now I will wait for round 2 with the rheumatologist in July
To be honest I came away a bit angry after the appointment being 50 minutes late, ...to then be put with someone who had no idea about me or Fumaderm and had to keep slipping out to ask the consultant what to do left me more than annoyed.
And no further forward than I was when I wasted the best part of an afternoon
We had a discussion as he had seen a copy of the letter from the rheumatologist and he said I understand you are going to come off your current treatment.......Fumaderm
I said no it's not likely to happen unless the rheumatologist can give me a good reason to come off it.
We then had a discussion regarding Fumaderm versus Methotrexate.
He understood my point of view although he said I might have more difficulty convincing the rheumatologist
The good thing is my bloods are good and the lymphocyte count is up to 1.49
I am due to see the dermatologist on Friday and hear his opinion on how to progress with my treatment
I have a couple of plaques appeared in my right side they are small and no longer producing scales
11 March 2016
just got back from a meeting with the dermatologists " assistant " today and he was reading through the letter the rheumatologist sent me .....he asked if we should do what the rheumatologist had suggested .....What ...... I asked if anyone was listening to me ...and NO I am not going back onto methotrexate...he said where does that leave us, I said why don't we try my suggestion and up my dose of Fumaderm and see if it works..( he scurries out to have a word with the boss the proper dermatologist) when he returns he waffles on about there not being evidence of it working on psoriatic arthritis ...... I said well there won't be if you pull the plug when it's suggested.....
I told him of the forum and people here on DMF treatments for PsA. But he was not prepared to raise my dose for fear of side effects...... I pointed out to him that I am having monthly blood tests and my levels are good and if I develop low blood count or increased creatinine we could reduce the dose as with Fumaderm all these effects are reversible........he wasn't listening ....his boss had told him one thing and he wasn't for shifting
I asked him where do we go from here? He said continue on my present dose till I see the rheumatologist in July or take methotrexate .....I said I would rather stick needles in my eyes... We agreed we weren't getting anywhere
So now I will wait for round 2 with the rheumatologist in July
To be honest I came away a bit angry after the appointment being 50 minutes late, ...to then be put with someone who had no idea about me or Fumaderm and had to keep slipping out to ask the consultant what to do left me more than annoyed.
And no further forward than I was when I wasted the best part of an afternoon