Tue-25-10-2016, 10:45 AM
This is in uk, it's not about costs it's about procedure. For some reason, different healthcare trusts seem to have different procedures.
I'm sorry to see Smegs has been landed in a hot debate - agreed, it sounds like not a good idea to adjust your dosage yourself, since it could potentially be dangerous and when they get your blood test results they will look at it with regard to the dosage they believe you to be on.
However, I do think advice on here shouldn't really be about whether you can or can't take certain amounts but more what Smegs can try and do about the dermatology (lack of!) situation.
So, are you at a very small hospital or something? And could you potentially go to a larger one? Also, if you do some hunting online you can often find a derms email address and speak to them that way in between appointments, or get their secretary.
Given you say you have lost your derm - are there now none at the hospital? Because if you've been referred to one and that has been removed before your treatment is at least stable I would complain to them or go back and tell your GP what is happening.
Don't listen to people calling us 'whinging' - especially those who have different healthcare systems - we are in a position at the moment where we positively have to speak up or we are assumed to be ok. That's not whinging, that's letting them know there's a problem. I had a terrible time during my uvb treatment where I couldn't get seen and ended up on steroids so I know what it's like to feel lost in the system which assumes that everyone responds the same way to each treatment and doesn't need extra attention.
Good luck, I'm sure things will get better soon.
I'm sorry to see Smegs has been landed in a hot debate - agreed, it sounds like not a good idea to adjust your dosage yourself, since it could potentially be dangerous and when they get your blood test results they will look at it with regard to the dosage they believe you to be on.
However, I do think advice on here shouldn't really be about whether you can or can't take certain amounts but more what Smegs can try and do about the dermatology (lack of!) situation.
So, are you at a very small hospital or something? And could you potentially go to a larger one? Also, if you do some hunting online you can often find a derms email address and speak to them that way in between appointments, or get their secretary.
Given you say you have lost your derm - are there now none at the hospital? Because if you've been referred to one and that has been removed before your treatment is at least stable I would complain to them or go back and tell your GP what is happening.
Don't listen to people calling us 'whinging' - especially those who have different healthcare systems - we are in a position at the moment where we positively have to speak up or we are assumed to be ok. That's not whinging, that's letting them know there's a problem. I had a terrible time during my uvb treatment where I couldn't get seen and ended up on steroids so I know what it's like to feel lost in the system which assumes that everyone responds the same way to each treatment and doesn't need extra attention.
Good luck, I'm sure things will get better soon.