Mon-24-10-2016, 11:01 AM
(Mon-24-10-2016, 10:46 AM)Smegs Wrote: Thank you for all of your responses .
I do agree the self medicating was rather stupid , I am just so frustrated right now .
The derm I had has left the hospital so now I don't have one .. have just been placed with a nurse who to be fair really doesn't care at all .
I kind of feel if they had gave me sooner / more regular appointments ( once a month maybe ) and increased by 2.5mg a time the I would be on more mg's by now anyway and then maybe the drug would be working steadily .. as I say right now it has got so much worse .
Even the mention of me trying something else they will not entertain
Coming off everything completely is fine but then when I get to the flare stage it takes literally forever to get back on the dermatologist's books .. really don't know what to do
Right now I just feel like I can't deal with this anymore . My scalp is so sore and bleeds .. no matter what I use on it , it doesn't make the slightest difference . I use coconut oil every other night but all that does is leave with with sore boils and spots on the nape of my neck , back and head
Skin is sore on my knees and bathing the little one is just hard . Feel like giving up right now
Thank you all again
Don't give up Mate you have a right to treatment.
Go to this thread Dermatology Life Quality Index (DLQI) and print out a copy of the DLQI. Fill it in (give worse scores than you think they are) Then contact the dermatology department of your hospital and tell them you need an urgent appointment as your current situation is causing problems with your quality of life, tell them you have been guided to fill in the DLQI by Psoriasis Club and you demand that a dermatologist looks at it.
A nurse can not treat you, he/she does not have the power. It's a dermatologist job, and you have the right to be treated properly.
Unfortunately this is one of those cases where you are going to have to get angry with them. It's not always easy for some to do, but trust me it works if you start kicking up a fuss. They won't like the mention of social media, newspapers, etc getting involved. And to use one of Bills sayings. (It's time for some Wingeing)
Don't give in. Were behind you all the way.