Sun-02-10-2016, 17:38 PM
(Sun-02-10-2016, 17:05 PM)elpuno Wrote: hi there,
my name is phil and i am from germany so please excuse the wrong spelling and other mistakes :-) i read a lot in this forum and now i decided to give you a bit of my experiences back. there is a lot of information in this forum and all of you seem to be very nice people :-)
i am 34 and in the middle of may (so about 4.5 months ago my hand started itching. The dermatologist (is that right) said "ekzem" and gave me cortison creme and said "good luck". after 2 months of using the cream and a lot of other creme i went to the dermatologic clinic here in munich because they are specialized for treatments of the ekzem. they also said: ekzem (second time i had the diagnose of a ekzem).
So i started with a PUVA-treatment at the end of juliy until the beginning of september. it helped a bit but not as good as i was hoping and so they decided to give me toctino. The doctor that had to decide about the dose (he is something like the superstar in this hospital concerning all things with psoriasis. and, surprise: he is really nice) took a look at my hand and said that toctino is not the right medicine for psoriasis pustulosa and i had to take neotigason. nice, after 1.5 months i finally got a new diagnose.
anyway i started with 30mg per day four weeks ago. minimal side effects (i am always tired, sometimes i got a headache) but the skin on the hands and the feet is really really peelng off. blood values are also very good at the moment.
but no itching and no pustulosa at the moment only red skin on the hands and feet and i hope the peeling ends soon, i heard and read that this is a normal side effect. will continue with the 30mg per day until i went to the hospital in 2 weeks.
so long, greetings from germany and all the best to all of you
philipp
Hi Philipp and to the club .... don't worry about spelling here my posts have plenty of mistakes and it's my native language
So you were misdiagnosed at first but many of the things you were prescribed could have worked for your psoriasis. But you have now got Acetretin and seeing good results
I'm sure some of our Acetretin users may have some advice for you, but as you say your side effects seem quite usual and should get easier as time goes on
I look forward to hearing more from you as the treatment progresses
Jim