Thu-17-03-2016, 12:56 PM
(Thu-17-03-2016, 12:41 PM)krug22 Wrote: In fairness Bill, I feel Fumaderm was a last resort approach as Acetretin did not control it and Cyclosporin caused problems. The Dermo was suggesting injections and indeed sent my husband for the pre tests necessary in case the Fumaderm did not work. My only reservation with the treatment was why he was allowed to stay on such a high dose and not weaned off although we did take it down to 5 a day instead of 6 in January. But his psoriasis was very very bad with frequent infections...so I guess it was a loss/gain analysis. But yes I do worry that it was not picked up in the blood tests. When we had problems with the Ciclosporin the Dermo asked us what we wanted to do and I asked if it was worth trying a lower dose- with feline medicine, we try the very lowest dose of potentially toxic medication to keep the sypmtons under control. The Dermo agreed, but blood tests did not improve so he had no choice but to take my husband off it. But the fact he asked us what we wanted to do, suggested that there was no easy answer.....but please remember Eric is 77 and with the anemia may well have other co-morbidities so Fumaderm may well be a great drug for most people.
It might have been better to order Psorinovo from the Netherlands. It has several advantages over Fumaderm. One of them being no MMF in it, which is known to be toxic.
You could say that it is not in the guidelines, but over here in NL we order in fact the working substance, so ordering Fumaderm, Psorinovo or others DMF variant which exist over here with us, is all ok and covered by the insurance.