Thu-25-02-2016, 10:06 AM
(Thu-25-02-2016, 09:20 AM)Sandra Wrote: Hi JimI noticed you online yesterday so thought I would ask, you have had a rough time of it, and it certainly seems your body doesn't like acetretin, I hope the kidney damage isn't to serious, and there is no cancer....were you monitored while on acetretin?
Sorry I haven't been in touch. Unfortunately I became very unwell on the acitretin. I still have some tests to go as it appears to have damaged my kidneys. Worse because of the symptoms being similar they will also be looking for cancer. Most other issues have resolved now that I am no longer taking it. So it really is a case of waiting for Cystoscopy test to see what the damage is. After this I will not be taking anymore drugs for psoriasis, just creams. My worst fear of these drugs occurred and for me it is now a case of, no matter how bad the psoriasis is, I just need to put up with it and stop moaning! Although the consultant wants me to try other Meds, (if the test results are o.k.) I have said no. I have this test on 1/3/16 and have told them that it makes no sense to me to continue to use/try something with potentially serious side effects some of which I have already experienced with Acitretin.
Because of this drug I was unable to work for over a month, though I cannot deny it really helped my skin. For me it's time to call it a day.
So I am back at work, Spring is in the air and I am already pottering in my greenhouse. How about you? Things o.k?
Sandra
I understand your reluctance to take anything else, that is of course your choice, although I would hope another drug would be less harmful
Yes you certainly expressed those fears here and I was one that encouraged you to take the plunge,
So I won't try to encourage you on to any other treatment
I'm glad you are recovering, do you know what damage has been done?
I'm glad you are back at work, this must have been a nightmare for you,please keep us informed of your progress,
How's your skin at the moment has the psoriasis returned ?
I wish you better health in the future Sandra and do stay in touch