Wed-10-02-2016, 15:26 PM
(Wed-10-02-2016, 13:27 PM)braye lodge Wrote:(Wed-10-02-2016, 07:09 AM)Caroline Wrote:Thanks caroline, yeah glad to find something thats worked so far.(Wed-10-02-2016, 01:40 AM)jiml Wrote:(Wed-10-02-2016, 00:53 AM)braye lodge Wrote:Yes psorinovo just DMF and is cheaper than Fumaderm as is raw DMF....but .......(Wed-10-02-2016, 00:40 AM)braye lodge Wrote: You see ive been living in guernsey for 2 years. When i first came i had to go on a waiting list for the dermatolgist. I had previously been on methotrexate and it didnt agree with me. I then went onto cyclosporine which also didnt agree with me. Now on fumaderm over 6months. Its the best its ever been in 12 years.My quailty of life has improved dramatically, but now im worried about the cost of it in ireland. Im also worried that ill have to wait a long time until i see a dermatoligist publicly
Also from reading another post ive discovered dmf, is this the same as fumaderm. I ask this because, someone has said it was cheaper?
(A) I don't know if you can get psorinovo in Ireland although Caroline will tell you how much it costs and if you can purchase it
Hi Braye,
Welcome to the forum. Hope you will have a good time over here with us.
Up to now I have followed the discussion as Jim and Fred did a very good job and I did not have to step in yet.
Now Jim mentioned my name, so I am really triggered.
I wrote a threat about DMF which is over here Dimethylfumarates and Psoriasis, so there you can read why it works for you and I am glad it does.
The working ingredient of Fumaderm is the DMF. The other substances in it do nothing against your psoriasis. The medication I take, Psorinovo is plain DMF, but contained in a package that protects your stomach and is released slowly in your intestines, and the last thing is very important, as it removes lots of the side effects.
It can be ordered from the Netherlands, that is the only place where it is produced. I think, but am not sure as I normally don't see the invoice as this goes to my insurance, I pay about €400-€500 for 600 pills.
E.g. Joana from Poland orders it in the Netherlands, that seems to work without complications.
Quote:(B) Bills method is fascinating watching and learning from him how effective it is and a fraction of the cost of tablets ... And not to be recommended
Bill is a special case. He is considered as "our Professor" over here at the forum. His starting point is pure DMF, which is very cheap available on the world market.
I think that what he does is doable for any of us, as long as you are secure enough for the detailed steps he takes.
What we certainly can learn from him is the intermittent use of the DMF. So e.g. take the medication during the week and have a rest in the weekend. It has several advantages. Your "system" does not get used to the DMF which is a risk as than it may get less effective and it is better for your lymphocytes, who have the time to recover in the weekend.
keeping an eye on your blood counts remains very important !!!!!
I read you are in your early 20's. You are even younger than me! Then DMF is a good way to go, here in NL I know more who started very young on DMF and still are going strong. It is a medication with minor problems. Way way better than MTX and cyclosporine.
Cheers,
Caroline
Okay so dmf is an ingrediant in fumaderm and psorinovo has less side effects ?
So can fumaderm become less effective over time?
I Didn't think you could order from netherlands. Thought it was up to the pharmacy to make thr order?
I think anybody can order from anywhere. You also can buy books from amazon in the States right? Always think out of the box, more is possible than you think.
You can send a PM to Joana on how she does it. Or I can give you a phone number and you can ask for it yourself on what you need to order it.
Yes. DMF is the working ingredient.
Yes. Psorinovo has less side effects. Virtually no cramps. And no threat for the kidneys. No additives which makes it possible to even increase to 12 pills a day. The only limit is the effect on the lymphocytes.
Yes, Fumaderm and Psorinovo can become less effective over time. But that more has to do with your body and the way your body deals with it, than with the medication. Therefore the advice to take it intermittently.
Still DMF belongs to the type of medications that can and are used for very long times. I am using it more than 10 years now, no sign of decline. I know people who are on the range of 15 to 20 years of use without problems.
And for your sister... how young is she?
MTX is a chemotherapy.... be very careful with it. !