Fri-05-02-2016, 15:15 PM
(Fri-05-02-2016, 14:58 PM)phil Wrote:I have just done some reading and Fred gave me a document to read plus I have read an account of the warnings in America regarding tecfidera use for MS patients.(Fri-05-02-2016, 14:06 PM)jiml Wrote: That's very interesting I will have to have a word with my dermatologist, but first I will do some research and find out how many on fumaderm have contracted the virus
Thanks Phil I wonder what that means for the future of DMF drugs for other conditions
Jim
it might only be one person but they told me they
dont want to put any of their patients at risk.
but i say again this is Guys hospital
you Dermatologist may have a different view.
as for the future who knows.
Phil
And as Caroline says they are not telling us anything that wasn't already known and the incidence of getting PML after contracting the JC virus are slim if monitored properly and white blood count stays relatively normal and I would far rather take the risk with Fumaderm than the far greater risk from methotrexate..
The few cases there have been with Psorinovo, Fumaderm, and tecfidera can generally be put down to lack of proper procedure and monitoring.
Yes Guys hospital may just be watching their backs, I will gladly sign a consent form if required but it is a shame as it is such a good drug, that prescribing it in the UK may be curtailed,and there are far worse ones being prescribed some causing depression and suicidal tendencies
Thanks for the information.