Health Boards
(Tue-05-01-2016, 11:13 AM)SNH8604 Wrote: Hi guys! I'm Sarah and I'm 29. Let me just say that I have been looking for a support group like this for a long time!!! I was diagnosed 11 years ago. It runs in my family, but not with my immediate family.... Is that weird? My Gma, aunt, and cousin have it, but they all have plaque, and I have guttate. None of them have tried the drugs that I have. They use topical creams and like to take a more natural approach, as some drugs nowadays have quite the list of side effects. I started with topical, tanning, then enbrel, methotrexate... Both of which didn't work and methotrexate gave me really bad stomach pains. My dermatologist then sent me to a psoriasis specialist. He's amazing! He's one of the lead speakers at the psoriasis association (or something like that) lol But anyways, he put me on humira, which worked, but was a really painful shot. I dreaded it. But, my co pay card eventually ran out, so I stopped taking it... Thinking it was already healed, why would it come back? Boy, was I wrong. It was back and the worst it's ever been. I didn't even want to go to the pool because I was always asked if I had poison ivy. Then, he started me on cosentyx about 4 months ago. It's injection as well. I'm wondering if anyone is on it yet? It's incredible. Everything cleared up within weeks, and the shot is so much less painful. The only problem I have with injections is every couple months, my skin gets flushed. My hands, feet, and legs will feel really hot to the touch and my hands and feet feel really swollen. But it goes away the next day. I was wondering if anyone else had this problem? Anyways, I know I'm rambling. But, any extra information I can gain from everyone, or if there's anything I might be able to help with, I'm here. I Am really happy I stumbled upon this website. Thanks for listening.
Hi Sarah and a big psoriasis club
to you, if you were looking for a support group you couldn't have found a better one, we are an international club with members from all around the world drawn together by this terrible disease, here we share experiences and ask for and receive support. You will never get any unpleasantness here we aim to keep the site friendly and honest, with just our experiences and lots of information about the disease and its treatments.
I'm glad your dermatologist has got you on Cosentyx it's proving to be a very effective drug, I hope it keeps working for you , we do have a few members on Cosentyx perhaps some will answer this introduction
I hope you come back often and update us on how the treatment is working and let us know if the side effects calm down
The drug I am on causes flushing it is something I have got used to now and enjoy them during the winter months...
I'm also glad you stumbled upon this site, as your experiences will add to our knowledge and we will always be here to talk about anything
We have an active off topic section where as a member you can come and join in any of the conversations, all newcomers are made very welcome
