Thu-19-11-2015, 12:17 PM
Hello Con to Psoriasis Club.
They always say Tobacco and Alcohol are bad, it's rubbish in my opinion I tried giving up both and it made no difference. I did stay off the tobacco but only because it did help a bit with my breathing, but it hasn't changed anything in relation to psoriasis or psoriatic arthritis. I tried a few months without alcohol too but again it made no difference, apart from probably making it worse as life was becoming a bit boring without a smoke ir a drink. As for the diets, that's not for me as I enjoy my food to much to worry about what I eat. I eat a sensible diet as far as I'm concerned and have read some of the books but I'm a non believer that it could have a long term effect. (I appreciate you not mentioning the book by name)
Now Coesntyx (secukinumab) As the others have mentioned "You won't get it"
Three reasons why you won't get it.
#1 It's still a new drug and if they did offer you a bio it would be one of the others first.
#2 Bio treatments are only given if the psoriasis is very bad and you have failed on other treatments first.
#3 Your dermatologist will have to follow the NHS guidelines on treating you. Which you can read here: NICE issues new guidance for GPs treating psoriasis
Best bit of advise I could give you would be to work with your dermatologist and listen to them, they will follow protocol and work their way through it to try and find something that works. If you keep them on your side and do as they say, you will find later on you may find it easier to ask for something specific.
Re Ireland I think they have much the same system and a GP will not prescribe anything else than creams. If you did find a dermatologist there to prescribe an oral treatment you would still need to be monitored so I'm not sure how that would work.
If your employer is offering medical cover then I would go for that and ask if you can get private dermatology covered, if you can then you may be able to speed up the process of getting onto something you want to use.
Regards.
Fred.
They always say Tobacco and Alcohol are bad, it's rubbish in my opinion I tried giving up both and it made no difference. I did stay off the tobacco but only because it did help a bit with my breathing, but it hasn't changed anything in relation to psoriasis or psoriatic arthritis. I tried a few months without alcohol too but again it made no difference, apart from probably making it worse as life was becoming a bit boring without a smoke ir a drink. As for the diets, that's not for me as I enjoy my food to much to worry about what I eat. I eat a sensible diet as far as I'm concerned and have read some of the books but I'm a non believer that it could have a long term effect. (I appreciate you not mentioning the book by name)
Now Coesntyx (secukinumab) As the others have mentioned "You won't get it"
Three reasons why you won't get it.
#1 It's still a new drug and if they did offer you a bio it would be one of the others first.
#2 Bio treatments are only given if the psoriasis is very bad and you have failed on other treatments first.
#3 Your dermatologist will have to follow the NHS guidelines on treating you. Which you can read here: NICE issues new guidance for GPs treating psoriasis
Quote:
first-line therapy describes traditional topical therapies (such as corticosteroids, vitamin D and vitamin D analogues, dithranol and tar preparations). Second-line therapy includes the phototherapies (broad- or narrow-band ultraviolet B light and psoralen plus UVA light [PUVA]) and systemic non-biological agents such as ciclosporin, methotrexate and acitretin. Third-line therapy refers to systemic biological therapies such as the tumour necrosis factor antagonists adalimumab, etanercept and infliximab, and the monoclonal antibody ustekinumab that targets interleukin-12 (IL-12) and IL-23.
Best bit of advise I could give you would be to work with your dermatologist and listen to them, they will follow protocol and work their way through it to try and find something that works. If you keep them on your side and do as they say, you will find later on you may find it easier to ask for something specific.
Re Ireland I think they have much the same system and a GP will not prescribe anything else than creams. If you did find a dermatologist there to prescribe an oral treatment you would still need to be monitored so I'm not sure how that would work.
If your employer is offering medical cover then I would go for that and ask if you can get private dermatology covered, if you can then you may be able to speed up the process of getting onto something you want to use.
Regards.
Fred.