Thu-19-11-2015, 01:09 AM
(Thu-19-11-2015, 00:54 AM)jiml Wrote: Hi Con and a warm to the forum, we are a growing band of sufferers pooling our knowledge to help each other, by describing our personal experiences, and give each other support and personal advice.
You will find the forum packed with information on most prescribed treatments and the latest trial results , in fact anything you want to know is probably in here somewhere
I'm glad you found angels thread of interest and you came to discuss your thoughts with us
the search facility above will give results if you put Cosentyx in or secukinumab
We also have an active off topic section which you are welcome to join in the banter anytime you like, we make everybody welcome
Now about your thoughts on asking for Cosentyx from your doctor I think your chances are less than slim getting it (it's just my opinion) I hope they give it to you.
But I think you will need to be referred to a dermatologist at a hospital to get anything apart from creams and potions .
If you see a dermatologist they tend to have a protocol you have to go through starting with the least expensive which is likely to be methotrexate, I have my own views on that.
If you fail on that you may get offered Acetretin or cyclosporine or if you are lucky the drug I'm on Fumaderm
Cosentyx is so new I think it very unlikely you will be offered it first.......
However you may well get lucky , I hope so
Jim
Thanks Jiml,
I'll definitely check out the off topic section... I had a feeling the doctor may send me to the dermo, I called the docs office and requested a dermo appointment, I don't want to waste an appointment just to get another appointment. I was denied and called in
Once I get to the dermo I'm hoping if I state clearly why I don't want all the other drugs and insist on cosentyx they shouldn't have much of an argument... I am aware that some docs don't enjoy being schooled but I'll try and see what happens..
My two other options are to fly back to Ireland and see the family gp or try go private through my employers medical cover.
Whatever happens I'll eventually get it hopefully and maybe by then the other two il17 inhibitors will be on the market to force the prices down..