Health Boards
Sat-12-09-2015, 16:29 PM
(Sat-12-09-2015, 16:03 PM)bassman Wrote:(Sat-12-09-2015, 15:41 PM)jiml Wrote: Sounds interesting Bassman I look forward to reading what success you have with Cysteine, as I'm on Fumaderm and have always got one or two small patches somewhere, if you have success with it and if mine comes back any worse I may well try it myself.... It may also be a way I could reduce my dose as I seem stuck on 4x120mg tablets ... As soon as I drop a tablet my plaques start coming back
I am following the conversation with great interest
Jim, if 4 x 120g Fuma per day is still leaving you with odd patches, why not ask your Derm to increase to max 6 x 120mg per day ? It may just work for you. 6 per day hasnt entirely worked for me, but thats the randomness of P meds rearing their ugly heads, although its done a fairly good job. Just not quite good enough for my liking
No I'm happy on 2 the little patches I have 1 on my elbow and one on my scalp are about 1cm across and I'm trying to keep my lymphocyte count high at the moment 1.25 (normal between 1-3) so I'm well inside but on five or six my count went down to 0.69 and that makes me a bit uncomfortable with the increased risk of opportunistic infections striking.
So as I say I'm very happy as I am but if I see Cysteine working with you and Bill .. I'm thinking of trying it and maybe drop my dose again
We have one member on one 120mg a daydream fumaderm maintenance dose and has been on that for a few years if my memory serves me correctly RE: Fumaderm he comes here from time to time to tell of his continued success Mateychuk see list of all his posts here in his profile