(Fri-21-08-2015, 12:45 PM)Quish16 Wrote: I am posting on behalf of my 76 year old husband. We are having a lot of problems controlling the psoriasis although we are seeing the dermatologist on a regular basis. Ciclosporin did work but sadly blood tests showed that it also affected the liver and kidney function. The Doctor then tried reducing the dose but this did not help. My husband has been started on Fumaderm and took his first tablet on Wednesday night. He felt very sick today but I realise that this might be a side affect and am going to encourage him to keep taking it. He is still on Acetretin because the dermo felt he needed the overlap to prevent flare ups. I would say that the flare ups have been very bad and he has had to have antibiotics due to the infections. He is having a lot of problems walking due to the skin on his heels peeling.
I just wondered how others coped with Fumaderm? The Dermo did say that around a third of people have to come off it due to the side affects.....
If it does not work, the next option is injections but my husband is very against these. Also he has anaemia which is being investigated and the dermo wanted to find the cause of the anaemia before going down this route. He also has Lupus which is thankfully dormant at the moment. I do now understand that some of the medications initially used to treat the Lupus may well have made the psoriasis worse or even sparked it.
Thank you for reading. I do feel very out of my depth trying to help my husband - I am his carer, and he does get quite depressed at times especially when he is really struggling to walk or get his shoes on.
Hi Quish and to the forum you have come to a great place for support it is always available here for sufferers, and their carers of course . Psoriasis can cause depression as it is a very unpleasant disease to have and most of us have been depressed because of it . So your predicament is well understood here
We as a forum/club have a small and friendly bunch of sufferers always ready with a word of support or advice ...so never feel out of your depth again because we will help you with as much advice as possible
You do say your husband has anaemia already so knowing his lymphocyte count is quite important
As fumaderm and cyclosporine can cause your lymphocyte count to drop ... But I wouldn't be too concerned with that. As long as your dermatologist is doing regular blood tests
I'm assuming he is on the 30mg White tablets which are called fumaderm initial .... I'm surprised that the first one made him feel very sick ...
But yes if he can get over the initial side effects the drug is very good at controlling the psoriasis long term ...for me it has been 4 years virtually clear ( there's always a little spot somewhere to remind me I have it)
Ask away here with any questions we have several members on fumaderm and other dmf type treatments ...so you should get answers
Welcome again and don't feel out of your depth we are all in the same boat
Jim