Health Boards
Thu-30-05-2013, 23:20 PM
After a frankly horrific round of steroid creams, light treatment and numerous infections (hard not to get infected when your skin is constantly tearing) plus major bouts of Black Dog (my pet name for depression) I finally got onto Ciclosporin. Took over a year and I gradually became housebound/bedridden.
Anyhow, the Ciclosporin kicked in pretty fast. Took a bit longer to get my mobility back to normal and slightly longer to get the Black Dog back in it's cage.
I was prescribed 320mg per day but I have managed slowly drop it to 200mg and still stay comfortable. I did experience some nausea when I first began the treatment but that seems to have died down. The tips of my toes and fingers do tend to sting somewhat when I bathe or wash up but it's manageable. The bl***y excessive hair growth is a pain. I must be keeping Veet in business.
What annoys me though is, on two occasions, my prescription has run out before my next appointment. I can't get them on repeat prescription, it has to be at the hospital after a blood test and a consultation. Fair play, they have to keep a check on my kidneys and all that but it annoys me that, every so often, I have to go back to square one because I've only got say 3 months worth between 4 monthly appointments.
I'm facing yet another relapse. My meds run out on Monday but my appointment is not until June 11th. Within three days of coming out of my system I'm going to be in Agony Central again. Absolutely no cancellations available (believe me, I've begged).
Sorry for the long post but I just wondered if anyone else had had a similar experience with their Dermatology Clinic (or is mine just very bad a math)?
Anyhow, the Ciclosporin kicked in pretty fast. Took a bit longer to get my mobility back to normal and slightly longer to get the Black Dog back in it's cage.
I was prescribed 320mg per day but I have managed slowly drop it to 200mg and still stay comfortable. I did experience some nausea when I first began the treatment but that seems to have died down. The tips of my toes and fingers do tend to sting somewhat when I bathe or wash up but it's manageable. The bl***y excessive hair growth is a pain. I must be keeping Veet in business.
What annoys me though is, on two occasions, my prescription has run out before my next appointment. I can't get them on repeat prescription, it has to be at the hospital after a blood test and a consultation. Fair play, they have to keep a check on my kidneys and all that but it annoys me that, every so often, I have to go back to square one because I've only got say 3 months worth between 4 monthly appointments.
I'm facing yet another relapse. My meds run out on Monday but my appointment is not until June 11th. Within three days of coming out of my system I'm going to be in Agony Central again. Absolutely no cancellations available (believe me, I've begged).
Sorry for the long post but I just wondered if anyone else had had a similar experience with their Dermatology Clinic (or is mine just very bad a math)?
