Mon-06-07-2015, 11:28 AM
(Mon-06-07-2015, 11:12 AM)Denise Wrote: Hi jiml. Hope i spelled that right. Thanks so much for the warm welcome. Glad i found this site. Only 'we' can understand each other. Its a very pushed into a corner and forget about us disease isnt it. Even at the hospital they dont want to talk about side effects or how it affects your life mentally. I was told theres a lot of people much worse off than you, in other words get on with it and stop whining. Which i agree there definetely will be but at least listen to me for two minutes please cos this is personal and life altering. Anyway, again thanks for the welcome xxx
I'm glad you found us and yes Jim is the name but called all sorts on here, you will never be pushed aside here, yes there are people worse off, but that's an irrelevance to us and doesn't help to be told.
The mental effects of constantly staying covered and hiding the disease plus the itching and scaling and in many cases pain together with low self esteem. Is a real factor and should be treated with the disease, as you say it wouldn't do any harm for them to listen ...... Well we do listen ... And I believe dermatologists are now taking the mental side into consideration when deciding on a medication..
There are many studies reported on here on the quality of life and how psoriasis affects it.
So I try to stay positive and think the future for us and the following generations of sufferers won't be left to " get on with it "
So again come back often and enjoy the treats on offer
Jim