Tue-12-05-2015, 22:08 PM
Hi everyone
Just a wee quick update . Still on 5 a day, lymphos still 0.5. Side effects - still not good.
Had rubbish weekend, stayed in as couldn't go far from loo. Lots of lost sleep, and I think I have counted the tiles in the bathroom lots and lots ! That's when I'm not trying to get rid of the pins and needles in my feet from sitting for so long! Ha ha
Just when I think my system is getting used to them I seem to go backwards. Not sure why as I don't change anything. Can go 2 days with just one visit to the loo - though usually woken up at an ungodly hour. Then ok for rest of day , then crash, bang, wallop next three days horrendous. I've actually reduced to 3 over the last three days as bloody tired of it.
Skin much the same, arms ok, legs rubbish, some scale appearing back on ears and eyebrows . So not sure the next step.
I have derm appointment tomorrow so will see what she thinks -- not holding my breath for any good suggestions from her as I find it's a case of keep taking the meds and see you next time.
I hope your all well.
Angie
Just a wee quick update . Still on 5 a day, lymphos still 0.5. Side effects - still not good.
Had rubbish weekend, stayed in as couldn't go far from loo. Lots of lost sleep, and I think I have counted the tiles in the bathroom lots and lots ! That's when I'm not trying to get rid of the pins and needles in my feet from sitting for so long! Ha ha
Just when I think my system is getting used to them I seem to go backwards. Not sure why as I don't change anything. Can go 2 days with just one visit to the loo - though usually woken up at an ungodly hour. Then ok for rest of day , then crash, bang, wallop next three days horrendous. I've actually reduced to 3 over the last three days as bloody tired of it.
Skin much the same, arms ok, legs rubbish, some scale appearing back on ears and eyebrows . So not sure the next step.
I have derm appointment tomorrow so will see what she thinks -- not holding my breath for any good suggestions from her as I find it's a case of keep taking the meds and see you next time.
I hope your all well.
Angie