Sun-10-05-2015, 22:30 PM
(Sat-09-05-2015, 22:43 PM)Fred Wrote: Another thing I forgot to mention about What's it like living with psoriasis, it's your GP. He/she is just not qualified enough to understand, yes he/she has to follow a protocol as do the dermatologists but I feel had mine have not fobbed me off and told me to use Head and Shoulder shampoo which made it worse but told me to see a dermatologist earlier it may not have been so bad at the beginning.Fred never was a truer word spoken.
Having said that my first experience of a dermatologist was wait for an hour as everyone else in the waiting room has the same appointment time as you, then go into a cold cubicle and remove your clothes and stand there like a (well you know the saying) suddenly this grumpy old bloke in a white coat comes in and says "Aha Psoriasis take this poison Methotrexate all will be fine come back in six months.
Hell I nearly died from taking that stuff, I had no instructions on when to take it, I had one blood test and when I went to my GP with a stomach problem he said what the hell are you doing taking this amount every week.
I said that Twat you sent me to said it's good stuff, anyway I ended up trying Light treatment next that was funny as the nurse used to put her goggles on and sit next to me to get a sun tan from this huge round light. That done nothing much and I gave up, I just kept getting repeat prescriptions for Dovonex and Dodovbet and muddled my way through it.
Then one day psoriatic arthritis paid me a visit, I got the same old crap "Take Methotrexate it will be fine" Again I gave up and lived with it by popping loads and loads of pain killers to get me through the day, I found out they went well with Cannabis and a shot of Southern Comfort in a pint of Special Brew.
It wasn't till I moved to France and one day I couldn't move as psoriatic arthritis had taken over my whole body. that I got admitted to hospital and they sorted me out.
I sometimes think you youngsters are so lucky today as things have moved on, but then sometimes I think have they? Some members are getting excellent treatment whereas some are getting the treatment I had 35 years ago. Hell some are still to this day making their own concoctions, and some are falling into the same trap as many of us have and are throwing their money down the drain on false promises.
That was a discreet way of Fred bringing this thread but all what I said is true.