[split] from Fumaderm thread

[Johnmac]

Caroline,

Thanks for the fast & comprehensive reply!

Seems like it's a bit of a process - but that's okay, often the case with anything worthwhile.

Point taken about doctors, thanks.

So how is your proriasis now, exactly? What percentage improvement would you give it, & how long did that take?

Any side-effects of note?

I found a price list in the end. Psorinvo 120mg costs 75 euros for 100 capsules. If I took 6 x 120mg p day (for example) that would cost me 150 euros a month, or $US195 monthly.

That's very expensive. I guess there's no cheaper way?

Thanks again & all the best,

John

Hi Caroline,

Hi John,

I just tumbled on your post (one of the few English language mentions on Psorinvo online).

How are you going now? Has Psorinvo done something?

It's perfect, but no-one apparently believes me. Where my future looked quite bad a number of years ago, because of the PA, I had to quit running and was at a certain point on MTX, I met with a doctor (not a derm) and he directed me to Psorinovo. From that moment on it went better. And now I have the lowest psoriasis score on this forum. I still cannot run, but condition is great because of spinning that goes very well.

How does one begin with Psorinvo? I live in Cambodia & Thailand, so no doctor here would have heard of it. I'll have to dose myself. Where can I find out about appropriate dosing?

It is a very gradual build-up process, a slow slope of increasing dose, until it begins to work. Then you have a plateau phase that is as long as the build-up phase, and then there is a decrease phase until the first signs pop back up.. There you stop decreasing, go a bit higher and stay on that level.
You can ask at the Dutch website for more info.
You shall not dose yourself unattended by a doctor! There are a number of substances in your blood that have to be measured in advance and during the process, just for surety. They, the patients group from the website does not want any problem to appear with Psorinovo because of scientific research.

Do you get yours from Mierlo-Hout in the Netherlands? I contacted them, & they said they couldn't give me prices till I'd told them what dosage & how many. (They're a compounding pharmacy.)

Yes, that is the only place you can get it. They distribute all over the world.
If you ask a schedule from one of the Dutch doctors connected, and discuss this with your own doctors, you can order the right dosage.
Btw starting increments always go from 30mg/day. I am on 6x120mg.

Finally, is dimethylfumerate the only ingredient in Psorinvo? (Mierlo-Hout didn't answer that question.)

Yes. Because of this the dosage can be incremented to quite high levels without significant problems.

Thanks & all the best,

John

Gladly done.
Caroline