Sat-18-04-2015, 12:18 PM
(Sat-18-04-2015, 12:00 PM)Turnedlight Wrote: Hi there, I'm pleased to find this forum as I've been missing chatting with others about P. I haven't really had P until fairly recently in my late 30s, I did have an outbreak when I was 19 when I went off to uni but we thought it was eczema and treated it as such. Since then I've only had small patches occasionally but in 2012 I had an op on my leg under general anaesthetic and also embarked on a very stressful house extension and my P suddenly got worse.
Derm sent me for uvb but had to stop after four sessions on lowest dose as I had bad sunburn from it, which then turned erythrodermic, was a horrible flu like experience and took ages to get help, first dermatologist I saw dismissed me with steroid cream and didn't want to even see the offending skin. My own derm finally saw me, put me straight on prednisolone for about three months. Came off that onto mtx which was great for a while, I was almost entirely clear and tried to wean off it but P cam back rapidly so stayed on mtx, which no longer works so well. Can't cope with the higher 25mg dose so now coming off and going onto Humira.
I'm looking forward to coming off mtx and hoping my energy might return, the side effects seem to get worse with each dose, but scared of Humira!
Looking forward to chatting with you all
Hi Turnedlight I'm glad you have found us so to this friendly forum which has a great group of fellow sufferers all looking for the elusive cure... However I think we all know it's not going to happen so we share our experiences of coping with it and trying to keep it in remission.
You sound as if you have had a bit of a nightmare with psoriasis, but let's hope you will get relief with Humira. It's a great bio drug and several on here use it successfully.
However if it makes you nervous and you decide it's not for you there are still many alternatives like the drug I use Fumaderrm which is available on the NHS,
I can't really comment on the bio drugs having never had to go there I was lucky just over three years ago I was put on Fumaderm and it has transformed my life.
But you must do what you feel is best for you and hopefully Humira will be the one . I shall cross my fingers for you, do return and keep updating your post , as a record for yourself and a guide for others
I wish you much luck and feel free to join in the banter in off topic where we have a lot of threads for all members to join in with like the popular chatting thread
Hope to chat some more soon
Jim