Health Boards
Mon-23-03-2015, 23:48 PM
Hi Cathy,
Just to give you a bit more info on my experience thus far...i started on 30mg per day and started to experience fairly severe gastric side effects when I got up to 480mg per day (I'm currently on 720mg per day). I found that if I did eat, I would get bad cramps and an upset stomach, but when I didn't eat I got the symptoms of severe acid indigestion and nausea and/or vomiting.
I should point out that I have had moderate-severe IBS for 14 years which no doubt doesn't help with the stomach related side effects.
Having persevered through some hard day's, I have learned that eating a nice substantial meal with each dose really does make a huge difference. I've always been more of a grazer by nature but I have adapted my eating habits to be able to tolerate my dose. E.g. I used to eat a lot of salads, which I can still do but only if there is a carb component to my meal.
The other thing which helped me was that my deem have me the freedom to adjust my dose as I felt necessary. This was awesome for me as I felt like my condition was being treated as a part of living a normal life, rather than something to be traded for another set of symptoms to deal with.
The nausea for me lasted about 3 months on and off. Not wanting to discourage you and you may well find it more short lived. I quickly discovered there were certain things (for me it was coffee and garlic) that my body couldn't even tolerate the smell of. Yet here I am a few months later on the maximum dose, drinking coffee, eating Bolognese and only occasionally having a 'bad day'.
My advice would be to put up with what you can, knowing that it's likely not long term, keep in close contact with you dermatologist if you can, and talk through any worries here. There's a really lovely supportive bunch of people looking out for each other.
And good luck! Keep us posted!
Just to give you a bit more info on my experience thus far...i started on 30mg per day and started to experience fairly severe gastric side effects when I got up to 480mg per day (I'm currently on 720mg per day). I found that if I did eat, I would get bad cramps and an upset stomach, but when I didn't eat I got the symptoms of severe acid indigestion and nausea and/or vomiting.
I should point out that I have had moderate-severe IBS for 14 years which no doubt doesn't help with the stomach related side effects.
Having persevered through some hard day's, I have learned that eating a nice substantial meal with each dose really does make a huge difference. I've always been more of a grazer by nature but I have adapted my eating habits to be able to tolerate my dose. E.g. I used to eat a lot of salads, which I can still do but only if there is a carb component to my meal.
The other thing which helped me was that my deem have me the freedom to adjust my dose as I felt necessary. This was awesome for me as I felt like my condition was being treated as a part of living a normal life, rather than something to be traded for another set of symptoms to deal with.
The nausea for me lasted about 3 months on and off. Not wanting to discourage you and you may well find it more short lived. I quickly discovered there were certain things (for me it was coffee and garlic) that my body couldn't even tolerate the smell of. Yet here I am a few months later on the maximum dose, drinking coffee, eating Bolognese and only occasionally having a 'bad day'.
My advice would be to put up with what you can, knowing that it's likely not long term, keep in close contact with you dermatologist if you can, and talk through any worries here. There's a really lovely supportive bunch of people looking out for each other.
And good luck! Keep us posted!