Mon-09-03-2015, 22:56 PM
(Mon-09-03-2015, 22:13 PM)jiml Wrote: Yes Caroline a different perspective and a very good example of what can be achieved. But you are lucky there is no way I could do what you have done in the UK
I admire your resolve and the study you must have done before making the decision to start on Psorinovo.
May I ask is psorinovo an approved drug in Netherlands now? Or do you still have to fund it yourself
The trick is simple. Psorinovo is not registered.
But.... the substance DMF is registered as a medication, and because of this substance medication all medicines that contain it are covered by the insurance.
Still the patients organisation is working on the registration of Psorinovo, which is extremely difficult. Therefore there is a working group, called SWOP, that works on the start of scientific research. Have you seen my tweet on that? Recently there was a short item on TV. In my tweet I am pointing at that transmission.
In the transmission you also see dr. Van Loon, he is the man that got me on Psorinovo. As I said in a way earlier post, not so handsome as the rheumatologist in the hospital, but way better than him.