Health Boards
Mon-09-03-2015, 22:04 PM
Yes !!!! I played with my treatment !!! And it was the best thing in my life I ever did ! (Except for some things that have to do with love).
Basically people stay with what they have. And people tend to go the way of normal medicine, standard protocols and registered medication.
So far so good.
But ....... If I had done that, I would now maybe be a tenth of the person I am now. I was so stubborn to get away from MTX and go my own way to a medicine that is not registered but has a long track record in Germany and the Netherlands. A medicine that normal doctors even did not want to prescribe!
I was lucky to bump into it, I do see that. And me too want to shout of the roofs, people, do try my medication!!! But because of the reasons you describe that will not work. So what I do is give a description, support people who are occasionally wanna try, but the ones that will stick to the opinion of their doctors, they must know that for themselves. What I try to do is provide them with information and make them stronger by trying to make them aware that it is their body what is being discussed, not the one of the dermatologist or rheumatologist.
I am very relieved that I followed my way, that I am not on MTX, I do at a certain point want children and my feeling is that MTX is that poisonous that it would have damaged my reproduction organs.
Now I have a low PsA score. And I am able to live quite well with it.
Caroline
Basically people stay with what they have. And people tend to go the way of normal medicine, standard protocols and registered medication.
So far so good.
But ....... If I had done that, I would now maybe be a tenth of the person I am now. I was so stubborn to get away from MTX and go my own way to a medicine that is not registered but has a long track record in Germany and the Netherlands. A medicine that normal doctors even did not want to prescribe!
I was lucky to bump into it, I do see that. And me too want to shout of the roofs, people, do try my medication!!! But because of the reasons you describe that will not work. So what I do is give a description, support people who are occasionally wanna try, but the ones that will stick to the opinion of their doctors, they must know that for themselves. What I try to do is provide them with information and make them stronger by trying to make them aware that it is their body what is being discussed, not the one of the dermatologist or rheumatologist.
I am very relieved that I followed my way, that I am not on MTX, I do at a certain point want children and my feeling is that MTX is that poisonous that it would have damaged my reproduction organs.
Now I have a low PsA score. And I am able to live quite well with it.
Caroline