Health Boards
Tue-24-02-2015, 06:36 AM
(Mon-23-02-2015, 15:13 PM)Kato Wrote: Thanks for the responses :-) Sorry its taken me a while to reply...busy weekend!
Feeling pretty ill on the 8 a day regime, but I got used to that from when I went up to 6!
I have a blood test booked in a couple of weeks so at least I'll get an idea of whether the high dose is having any negative effects. I had a chat with my Dermatologist about it becasue the BAD advice was 6 tablets max per day, but in Germany the max is 12!
My Derm also told me that its not licensed here because they have not done the research to determine which of the 4 esters are 'active ingredients' (i.e. provide the clinical benefits). I'm not sure how accurate this is but I do find it interesting, and the fact that it can be prescribed here on the NHS without being licensed!
Caroline - I'll definitely have a look at your post when I get the chance...interesting stuff!
Kath
Hi Kath,
The max dose in Germany is 6 tablets, I am quite sure of that.
Your dermatologist may be mistaken by information on another tablet called Psorinovo. With that one there is no limitation as in that one the monofumarate and the salts are missing.
So please ask him for that product and if possible continue on that one.
It is correct that they did not do the research, but it is even widely known outside of the medical circuit that the active ingredient is dimethylfumarate, so they make a fool of themselves by saying that. There is no sensible reason for any country to redo the reseach of Germany again. It is all EUropean, so why go through the trouble a bit of literature study would be enough.
In the Netherlands it is not the tablet that is licensed but the working ingredient dimethylfumarate is licensed or better, accepted.
Fine that you keep us updated and give us the ability to suggest from our knowledge.
Caroline