Mon-02-02-2015, 19:30 PM
(Tue-16-09-2014, 04:26 AM)Quest4Cure Wrote: I am in the mist of deciding on a bio that could open my fingers due to P a. & Dupreytrends contracture. It's on both hands & THR right hand of course the one I use is curled up and frozen a bio drug called Xiaflex is made from a bacteria in soil & from feces. It's a injection in the tendons of the hands that r thick causing the fingers to retract. It will also help the P a. & with a hand splint and PT it could give my hands back .
It's is approved by the FDA and has a lot of side effects. The risk is there as with everything. I am hoping to hear from someone else who has either used it or familiar with it.
It's new and only a few surgeons have had training and experience. I will try it . I would like to be able to use my hands again. I will find a surgeon who has done enough injections using this bacterial bio not simply trained. It's how many they have done and the experience that's important .
From what I have read about the drug it's a toss of the dice if it works. Like I know from experience that doing the research and interview the docs I am hoping to gather enough info
To be confident in my decision to go forword with the injections in four fingers. And stop the Pa from causing any more damage to my joints.
Hi I often notice you on the site and wonder how your hands are ans d did you ever get the xiaflex for your condition?