Health Boards
Wed-21-01-2015, 14:33 PM
OK I'm back from my appointment with my dermatologist, and she was as disappointed as me to see the state of the psoriatic arthritis.
My bloods have shown there has been an inflammation flare up, what caused it we don't know but it is slowly going back down again and I did manage to drive today which was nice as I'm not a good passenger. Mrs Fred was pleased too and she said she noticed I was moving a little better toady.
So back to the appointment, she gave me 5 options.
#1 Yep you guessed it Methotrexate. I refused.
#2 Small Methotrexate injection. I refused.
#3 Go to Rheumatology and see what they say. I've booked an appointment for April to coincide with my next dermatology appointment, as I already know the answer from the last time I went to see them "You have psoriatic arthritis and we prescribe Methotrexate" so that will be a waist of time.
#4 Stay on Stelara and ride out the inflammation with some anti inflammatory pills as and when I feel I need them. I've taken the prescription for the pills just in case I do feel like giving in and taking them.
#5 Give Stelara another try on a double shot again over 3 months instead of 45mg on two months. I wasn't keen as last time I tried 90mg it made me feel like a zombie, but this is what I'm going to do.
I asked about Simponi (only available via Rheumatology) she phoned them and had a chat, but they said NO as I have had a reaction to both Remicade and Humira in the past and they felt the risk was to much as it's a similar product.
I asked about Fumaderm and it's not available in France, and as far as I could work out the trials have been stopped.
I asked about Psorinovo and that is not registered for use in France.
So I'm stuck really, and unless I take Methotrexate with Stelara just to help the psoriatic arthritis there isn't much else they can do for me.
I'm a stubborn old sod and will not take Methotrexate, I may not even take the anti inflamotories (but will hold onto them for amunition) but another thing I can be is determined and that is what I,m going to do.
I will be concentrating on getting myself back into positive mode, I will take my 90mg of Stelara at the weekend, possibly take an anti inflammatory if needed and just get on with it.
My bloods have shown there has been an inflammation flare up, what caused it we don't know but it is slowly going back down again and I did manage to drive today which was nice as I'm not a good passenger. Mrs Fred was pleased too and she said she noticed I was moving a little better toady.
So back to the appointment, she gave me 5 options.
#1 Yep you guessed it Methotrexate. I refused.
#2 Small Methotrexate injection. I refused.
#3 Go to Rheumatology and see what they say. I've booked an appointment for April to coincide with my next dermatology appointment, as I already know the answer from the last time I went to see them "You have psoriatic arthritis and we prescribe Methotrexate" so that will be a waist of time.
#4 Stay on Stelara and ride out the inflammation with some anti inflammatory pills as and when I feel I need them. I've taken the prescription for the pills just in case I do feel like giving in and taking them.
#5 Give Stelara another try on a double shot again over 3 months instead of 45mg on two months. I wasn't keen as last time I tried 90mg it made me feel like a zombie, but this is what I'm going to do.
I asked about Simponi (only available via Rheumatology) she phoned them and had a chat, but they said NO as I have had a reaction to both Remicade and Humira in the past and they felt the risk was to much as it's a similar product.
I asked about Fumaderm and it's not available in France, and as far as I could work out the trials have been stopped.
I asked about Psorinovo and that is not registered for use in France.
So I'm stuck really, and unless I take Methotrexate with Stelara just to help the psoriatic arthritis there isn't much else they can do for me.
I'm a stubborn old sod and will not take Methotrexate, I may not even take the anti inflamotories (but will hold onto them for amunition) but another thing I can be is determined and that is what I,m going to do.
I will be concentrating on getting myself back into positive mode, I will take my 90mg of Stelara at the weekend, possibly take an anti inflammatory if needed and just get on with it.