Sun-18-01-2015, 21:43 PM
(Sun-18-01-2015, 21:10 PM)jiml Wrote: Yes it can be off putting but remember the side effects are more manageable if you have been on this site and can get advice on when and how to take them. We have had more success stories with Fumaderm than failures ...I think we have had three members who couldn't tolerate the effects. And something to ease the cramps and flushes would be very welcome.
You will notice most don't give up because of lack of efficacy but because of the side effects, and that is a shame
Agree it is a shame as it does seem to work well, Yourself, Caroline, and Bill are testament to that. There are going to be side effects of all types of treatments, and some of us will get them and some will not.
For me it comes down to the unpleasant effects and I suppose that is what has happened to the 30–40% drop off rate, I can put up with the odd headache or flu like feeling from Bio's but getting stomach problems and the squits are a bit less easy to tolerate for me personaly.
My time looks like it's coming to have to start looking at another option, and although I read good reports here I can also find bad ones too and that is the good thing about Psoriasis club (It's people giving their honest opinion) and it helps me as a patient with my decision.
Those that are happy will always back up their experience just like I have done with Stelara, but now it looks like it's failing and I'm giving my opinion on its efficacy in my thread. So I'm looking at alternatives and threads like this help.
If only a few more would keep updating their threads here, even once a year could help others as opposed to reading studies.