So pointless

[Caroline]

I also asked about the treatment Caroline is on, it is currently not licenced in the UK but some large hospitals are using it for selected patients, Eastbourne is currently discussing being able to offer it to some patients, the doc said he is more than happy to discuss the treatment with me with a view to take it once protocols are in place which will be around feb!!!

Hanna,
Great that you finally have really someone who listens to you !

Does almost not surprise me that it is not licenced, although not logical, because you do not need a licence. There are no patents involved.
But I guess you need a kind of admittal from the health care, who are of course a bit scary to let anything through where they might be responsible for.
You in the UK are bit more americanized (suing culture) than we are, but we are following :-( . Which does not mean of course that I don't like the english, on the contrary. But english and english-bureaucracy are very different things.
And maybe over here in the netherlands, we are more buccaneers, as you know we have a very liberal society, almost everything is possible. But we have to fight hard for our rights on privacy and self-determination. Yesterdays elections will result in another attack to them.
Anyway, with us the patient has a responsibility of his/her own. And if we explicitly want something, we more easily (less difficult) can reach that.

Remember, dimethylfumarates and dimethylfumarates are not the same! And my treatment is a specific one that is unfortunately still not common over here.
Read all about it in my thread ! :-)