Health Boards
Tue-06-01-2015, 11:30 AM
Hi
Ther's no one size fits all treatment for this disease. There seems to be a lot of new science
On this disease. And many big pharm companies r on the band wagon. I have read a lot of clinical trials. When faced with a decision to try bio grugs can be overwhelming.
My best suggestion is to read as much as u can and find all the medical clinical trials on any new biologic.. Some have more side effects that others. Sometimes we must find the way thru all the adds we see on tv showing happy people playing golf or swimming ... All the while the side effects r mentioned and they r not pretty.
I hope that as these new bio drugs gain more experience from P. Patients on the market , then we will have better info . Until then if Nyone can join a clinical trial at a any teach hospital in their area. That is a good opportunity to learn first hand about these bio drugs.
I would like to propose that a special section be devoted to volunteers in aclinical studies.
And also a special topic on all the drugs available on biological drugs from members who have taken these drugs who can share their experience. Label each form just for those discussions.
The positive reactions & the different side effects to many is a big issue. I believe talking about how these drugs effect members will help many of those when nothing else has worked and give info not just directed to the remission seen on tv info, but also from members here sharing their experiences can help be a guide and inform those in the middle of these decisions.
Searching around this forum for past discussions may not be updated.
Most of the bio drugs r very difficult to decide on & to know the side effects. Yet everyone reacts differently to medication.
The newest bio drug just aproved by the FDA here in the states has the least side effects and shows to be very promising in shutting sown the pathways in the immune system. IL-17 is an example of one pathway thru which P has been identified and the bio drug is designed to shut down that at hay.
It's so overwhelming that's why it is so very important to have confidence in UR doc.
That's my story & I'm sticken to it. I will try a new bio once my insurance co approves it. They r very expensive even with insurance it's costly. I don't think I can put a price on it if a new bio drug will stop the damage already done to my fingers from PSA.
I hope u have a really good derm... I have seen mine for years. I know the new bio drugs coming down the pike the at few yrs will be worth the cost and giving it a chance. I can always stop taking it any time.
My biggest issue is it's really difficult to Post before & after pics of using these drugs.
Why can't we use existing pics I would like to post a pic of my hand. These are on my existing Photostream some system used on posting our forum ID, PICs.
It would be wonderful to post pics on this the same way we use existing pic. it's easy only take one step. And I like to communicate with pics. The old saying one pic is worth a 1000 words.
Hope existing pics can be added to posting soon. So many forums use this version.
If life gives you a set back, then don't step back, God is preparing you for a come back !
Ther's no one size fits all treatment for this disease. There seems to be a lot of new science
On this disease. And many big pharm companies r on the band wagon. I have read a lot of clinical trials. When faced with a decision to try bio grugs can be overwhelming.
My best suggestion is to read as much as u can and find all the medical clinical trials on any new biologic.. Some have more side effects that others. Sometimes we must find the way thru all the adds we see on tv showing happy people playing golf or swimming ... All the while the side effects r mentioned and they r not pretty.
I hope that as these new bio drugs gain more experience from P. Patients on the market , then we will have better info . Until then if Nyone can join a clinical trial at a any teach hospital in their area. That is a good opportunity to learn first hand about these bio drugs.
I would like to propose that a special section be devoted to volunteers in aclinical studies.
And also a special topic on all the drugs available on biological drugs from members who have taken these drugs who can share their experience. Label each form just for those discussions.
The positive reactions & the different side effects to many is a big issue. I believe talking about how these drugs effect members will help many of those when nothing else has worked and give info not just directed to the remission seen on tv info, but also from members here sharing their experiences can help be a guide and inform those in the middle of these decisions.
Searching around this forum for past discussions may not be updated.
Most of the bio drugs r very difficult to decide on & to know the side effects. Yet everyone reacts differently to medication.
The newest bio drug just aproved by the FDA here in the states has the least side effects and shows to be very promising in shutting sown the pathways in the immune system. IL-17 is an example of one pathway thru which P has been identified and the bio drug is designed to shut down that at hay.
It's so overwhelming that's why it is so very important to have confidence in UR doc.
That's my story & I'm sticken to it. I will try a new bio once my insurance co approves it. They r very expensive even with insurance it's costly. I don't think I can put a price on it if a new bio drug will stop the damage already done to my fingers from PSA.
I hope u have a really good derm... I have seen mine for years. I know the new bio drugs coming down the pike the at few yrs will be worth the cost and giving it a chance. I can always stop taking it any time.
My biggest issue is it's really difficult to Post before & after pics of using these drugs.
Why can't we use existing pics I would like to post a pic of my hand. These are on my existing Photostream some system used on posting our forum ID, PICs.
It would be wonderful to post pics on this the same way we use existing pic. it's easy only take one step. And I like to communicate with pics. The old saying one pic is worth a 1000 words.
Hope existing pics can be added to posting soon. So many forums use this version.
If life gives you a set back, then don't step back, God is preparing you for a come back !
