Hello from Jayniepops

[Fred]

Hey Jim


the acitretin is not working - having been on it now for a year - its not happening even though the dose is up to 40mg .


Consultant is recommending Adalimumab but has left me on Acitretin til I see him again in 2 months while I gather some info and talk to others (on here) that may have had experiences on this  - He also asked me to check out Ustekinumab as this would be the next step.

I am only unsure as I HATED Methotrexate and as an immunosuppressant  I felt ill alot if the time on Methotrexate and dont really want to feel constantly ill again.


I was wondering if anyone might have some advice or info they may like to share with me..

Hi to Kat and troll - (sorry still a newbie) not sure how to forum just yet - although am getting there (I hope) lol
xxxxx

Hello Jayne, sorry I didn't notice this properly until Jim pointed me here.

Tip for the day to you and any other member, never hesitate to start a new thread with questions. A new thread will probably get notice better than posting on and Intro.

But moving on, I have been on all the Bio's and they have all worked but they have also all caused me some sort of problem. It may take time to find what is right for you, but I'm a big big fan of the Bio treatments as they gave me back my life.

If your consultant is recommending a start on Adalimumab - Humira then I would say you have a good consultant as he/she is missing out Remicade (nothing wrong with Remicade, but it's one of the first they usually put you on) You also mention the next step would be Ustekinumab – Stelara that to sounds good to me.

As for experience all I can say is I've tried the two you are being offered and they both worked for me as di the others, but Humira gave me a reaction and Stelara has been the best thing ever for me (over 4 years now) That does not mean it will be the same for you as we are all different in what will work, but if you are being offered the Bio's I would say go for it.

They work quick, they give you your life back, and as you are on the NHS you don't have to think about the cost. I can honestly shout from the rooftops "without Bio's my life was hell, but now my life is mine again".

Jim has pointed you to the Bio thread these two are more specific to what you are being offered.
Humira (adalimumab)
Stelara (ustekinumab)

Jayne don't be afraid, the Bio's are nothing like Poison Methotrexate. I'm not going to lie to you there are side effects and you will find that with any treatment, but believe me Methotrexate was the worst thing ever in my life and The Bio's have been the best thing ever.

I would say don't hesitate go for Humira and be prepared for amazement, and if you want I'm happy to talk you through the injections and be there when you start if it's a problem for you.

But like I said don't hesitate to start new threads as you may get more answers.