Sat-06-09-2014, 14:47 PM
(Sat-30-08-2014, 09:34 AM)longtime sufferer Wrote:(Thu-28-08-2014, 04:26 AM)longtime sufferer Wrote: Hey everyone new to this forum but not in regards to P.Update: Day 6 tolerating drug so happy so far, skin has got bad quickly seems to be growing at an accelerated rate, hair is coming out (no im not bald but noticeably losing) but expected all of this. No headaches and feeling a lot better than at beginning.
I thought I would share my experience with you after starting Acitretin Aug 2014.
Suffered since age 12 and as a veteran of the vast array of meds on offer I am now at the stage of trying Acitretin. My P by the way is on the high end of moderate bordering on severe. Apparently, after bloods, cholestorol etc I am an ideal candidate. This is my second attempt at an oral drug as I reacted adversely to ciclosporin. I will share with you any side effects and effects on skin.
Day 1: 35mg Acitretin taken after breakfast, started to develop a pressure headache, foggy feeling and this didn't stop only respite is when asleep, nightmare.
Day 2: Same strict routine and again now a hazy headache not very alert, with a foggy feeling, after a nap feel brighter continued throughout day again nightmare.
Day 3: Headaches don't seem to be there today no pain and it seems the fogginess is going feel more brighter than last two days. Not sure whether related but my IBS flared badly in the am.
No significant change in skin or anything else will try and update again further along. However, I live in hope this treatment may help me but don't hold out much optimism considering years trying other treatments that have failed, anyway we will see.
Update: Day 12 hair is thinning and falling out getting me down now and dont know whether to stop drug am tolerating drug ok but hair falling out wasnt an option, lips are so dry and putting lip balm every half hour overall despondent not a happy bunny. Calling all Acitretin users present and past what should I do ? ;((